Phexia

Is anyone suffering from this? What meds are you taking and do you have any good advice to share?

I had very severe SPD during my pregnancies and it never went away after giving birth, 3 doctors have diagnosed me with fibromyalgia since then. I'm not taking anything now except painkillers since I'm TTC but I'm giving Neurontin (Gabapentin) a try next. Amitryptiline did nothing for the pain, I've changed my diet and that hasn't helped either. I was taking Topamax for migraine and it did wonders for my pain but I had to stop taking it because of side effects

The only thing that helps me is doing NOTHING. I can't clean, I can't walk much, I can hardly bathe my kids, I stopped working a month ago and went to uni again (distance learning) because of the pain. I didn't wanna go on disability, am gonna try extensive physical therapy and some other meds first. But I am concerned about going to work again I loved my job and was really disappointed that I had to quit.

Preggeronie

I have FM and chronic fatigue syndrome but I don't take any meds for mine since nothing seemed to help. I'm probably a little more tired than your average pregnant woman (and pregnant women are really tired to begin with!) but I'm coping. I can't imagine how you can work and have 2 kids and be pregnant! I'm glad you're taking some time off to take care of yourself.

The only advice I can think of is to take it easy and to prepare meals ahead of time on the days you're feeling good and freeze them. If you can afford it, maybe getting a cleaning service in the house once a week might help take some of the weight off your shoulders.

Phexia

I've been so much better since I stopped working, although uni is no picnic either. I'm very fortunate to have a helpful and understanding husband. When he's home he takes care of dinner and getting the kids to bed etc. I pay my brother and sister (almost 16 year old twins) to clean for me once a week. What bothers me most is the walking part, like when we travel to other countries I wanna walk around, explore cities and stuff like that but I hardly can.

And the worst part: I can't go to the mall and wander around like I used to, I can only manage a few stores! Pooooor me.

Oh and I'm not pregnant yet, I'm TTC .. will probably have to use crutches and/or a wheelchair when I do get pregnant I'm afraid, but it's worth it

I feel really sorry for you having Chronic fatigue syndrome and being pregnant, you must take many naps Some weeks I'm really really tired because of the FM but I've been pretty energetic lately. I'm hoping someone will find a miracle cure for these diseases in my lifetime.

Do you normally tell ppl you have FM or CFS? I try not to because some ppl don't understand it and think I'm really lazy, which is really not the case

Preggeronie

i'm the same as you, most people don't understand so I don't bother telling them. most people think i'm just lazy or lack motivation or i'm just being a baby, they don't understand how frustrating it is to feel aches and pains and tiredness that is so bad you can't think straight day in and day out. I was looking at baby names today and I swear it was like i was reading arabic or something... it just looked like jibberish to me. if I tell them they'll usually have some story about someone else who has some disease either the same or "worse" than mine and how well they're doing working and raising 6 kids and volunteering for the UN or whatever which just makes me roll my eyes.

I also have trouble walking. When I'm shopping or out somewhere I'll lean against something or sit down as much as I can, but usually I just have to keep things short. Even if there's no chair I'll sometimes pretend i'm looking at something on a low shelf so I can squat down lol...

I wish I could nap! I'm not a napper even though I've tried very hard to nap lately. One benefit of being preggers though is that I've heard that some people go into some kind of remission while pregnant that may or may not last after the pregnancy. I guess it jump starts whatever is wrong in the body into functioning properly. Now obviously that's not why I got pregnant (it was unplanned hehe) but I'll gladly take that side effect if it happens

good luck if you do end up getting pregnant, how exciting!!