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Old Sep 5th, 2006, 12:08 PM   #11
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20th March : 22.40PM

Quote:
We are supposed to be able to trust what people in the medical profession tell us!
Oh god no!! I don't trust their word or even respect their so called titles!

On early early Friday morning after my op I got out of bed & ended up back on gas n air again a short while later I was still a bit out of it an was feeling pretty uncomfortable but because of being slightly dippy I couldn’t figure out why. I got up out of bed & one of the nurses came in. Of course it was because I was bleeding from the operation. In normal mind I’d of known that before getting up. I still had my gown on an of course while I was still in recovery mode they put padding underneath me. I started bleeding which of course went down my leg. I was VERY sore an out of it. The nurse went ‘oh no your bleeding’ an walked out. OMG! I then somehow managed to get my bag and find my bits. PJ’s, knicks and sanitary wear. All I remember was the pain, dizzy, breathless & wanting my boyfriend.
(This was the night staff still)

This is not all …. After the night staff went off I had no pain relief (the medication I should have been on) until about noon! My boyfriend arrived an asked me had anyone even popped in to see if I was ok. When I thought about it no, not since the night staff. Around 11am a nurse came into me & told me she had no idea & was not informed she had me to look after. As you know they all have their group of patients.

I told the nurse I like to deal with from the early pregnancy unit this morning & she has reported the whole thing to the matron! She was shocked as well as disgusted but I can tell you not as much as my boyfriend & me are.
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Old Sep 5th, 2006, 12:11 PM   #12
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21st March : 21.01PM

Think I'm well on my way to have a proper bleed now as well. They will cover their back big time anyway the only thing it will do for me is make the process of carrying on after this longer. I will be making sure the treatment I received is noted - My partner is thinking of writing up an offical letter of complaint too.

We had a wee talk tonight & we're defo not gonna let this effect what we want. Apparantly that comes with sex 3 times a day though - The cheeky git <spot the chancer>

We have been given no advise on when its 'safe' to have sex again though & I've read so many different answers through google.
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Old Sep 5th, 2006, 12:16 PM   #13
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24th March : 16.35PM

Bad news for me again - I've now gone to a count of 320. They are not admitting me today due to no pain. I've got open access if I have heavy bleeding or pain bar that I've to be back to the hospital at 9.30 Monday - All I wanted was for this to be over so we can move on
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Old Sep 5th, 2006, 12:16 PM   #14
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25th March : 11.21AM

Spent most of yesterday in tears! Although what has happened was not what we wanted after all this it should have been the end so we could move on. Those results have come as a shock to the doctors & us. Well to be honest what are we suppose to be thinking when the people who should know don’t. I’m now at the point of not mentally coping. How can someone be this is like round 3 for us, first sent home with a failing pregnancy, then the op & it’s still not over.

They also had the results back from the tissues they kept for testing to see if they were pregnancy related & it seems thats not the case they were just normal body tissues.

I had the evac in theatre – What they call the D&C without the sharp instruments. Because they said there was no visible sign of a pregnancy in my womb I’m not sure if they did this procedure around my womb rather than in my womb. All I know is they took tissues from somewhere.

All she has said to me is they will go over my options on Monday. She mentioned an injection (well there’s 2) but she wasn’t able to discuss this over the phone. Does anyone have any idea what she’s on about? I also requested I was scanned before they did anything. I’m a bit worried now they think I’m lala for that request due to what they have done. Problem is she told me my blood counts now as they get more results were not normal for a healthy pregnancy an not normal for an ectopic result & of course there not dropping. So where is it

I’ve decided to blame my boyfriends sperm. He is a stubborn git & I think his sperm has followed his ways, planted its self somewhere & refused to move!
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Old Sep 5th, 2006, 12:17 PM   #15
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29th March : 10.43AM

Well my hormone levels continue to rise slowly.

Monday gone I had another ultrasound & what could be a pregnancy sac sits in my womb – 2mm. Levels however still continue to rise slowly. Well they sat up & paid attention an we had the main top consultant come chat with us yesterday.

Problem is we sit with these words ‘this has baffled us’ well if the doctors are baffled what the beep am I to be thinking right now.

Seems they are clutching at possibilities & one option that had been given to me is an injection of methotrexate a drug also used for chemotherapy!

http://www.drugs.com/methotrexate.html

I can see how this drug would help from the printed information we were given BUT erm wouldn’t this help if they knew what was going on. Telling me they are baffled does not put me in a comfortable situation to say yes to such treatment. A max of 4 treatments can be done. After a week of the first my levels are tested if the do not decrease by at least 15% I would need a 2nd injection. 1 injection means I am unable to conceive for 3 months & 2 or above means I am unable to conceive in 6.

This whole situation is now affecting my relationship in a way. Yesterday after seeing this guy I totally rejected this option but my other half wanted me to have it. I ended up ringing up the EPAU & arranging to get this going! I got really upset by that but I know now that he just doesn’t want to see me hurting anymore never mind his own mental & emotional state. After speaking to his mum though & her reaction being the same as mine including the reasons & now we have calmed down there is just no way!

Has anyone here ever had or known of someone who has had this treatment?

I’m now on like a weekly care plan to be scanned & HCG levels to be taken every Monday.

I am in hope that the suspected pregnancy sac is exactly that & in time my body will reject it.
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Old Sep 5th, 2006, 12:19 PM   #16
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4th April : 08.37AM

Good news for me well good news yet sad news over all but there was never a viable pregnancy.

My HCG levels decreased just over 100 in 7 days \/

I am so glad I went with my gut & refused their darn treatment =D>

Back next Monday & [-o< they go down just as fast as they have been in the last 7 days.
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Old Sep 5th, 2006, 12:27 PM   #17
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5thth April : 10.58AM

Looks like the little bugger decided to get stuck & fall through when it was too late.

Not out of the woods yet (as they said) but I think I am. I feel totally back to normal body & mind & just need to be back at the hospital every Monday until I'm below 5 or back to 0.

This has defo been an experience & a half only down fall is my other half thinks this is his chance to get it 3 times a day Twonk Lol!
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Old Sep 5th, 2006, 12:28 PM   #18
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10th April : 13.58PM

Been back for week 2's blood tests. The chances of a rise are small but not uncommon I've been told.

I feel lot's better now though in mind & body so I have all hope I will yet again get a decrease. Results at 4ish.

Getting tender boobies again but I think that’s my body trying to go back to normal, as I get tender when I’m due on. Mind bleeding for nearly a month has drove me MAD!

Shame & sadness all round really!
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Old Sep 5th, 2006, 21:32 PM   #19
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2nd May

Isn’t it sad in a way that I am pleased the EAPU has decided to investigate reoccurring miscarriages? I guess it is good news but it’s sad that something so devastating exists.

I went for my last blood test (well I hope it’s my last) but after my ectopic pregnancy I am pretty sure I got caught & miscarried again but a missed appointment made it hard to confirm that. My partner & me were discussing things last night & in my previous relationship I had one confirmed miscarriage but am certain I had more than one. Also my partner & me are sure of 1 or 2 miscarriages unconfirmed as well as the ectopic. Discussing my concerns & concerns to be monitored when I conceive next Julie (the nurse) has decided they will investigate. I’m really pleased as me & OH have decided using ovulation kits & testing for pregnant before AF was due was best to start confirming this to get it sorted so I’m really happy I don’t have to prove this to get some answers so we can carry on trying for our first in the know that we are being looked after & with all fingers & toes crossed I hope I have a successful pregnancy but it’s comfort to know if the worst is the worst I have help & I’m being monitored.

I was originally referred by my doctor for fertility testing. We were due to go to a new out-patient appointment on Thursday but obviously it's clear we are both fertile but the girl's at the EAPU have decided to investigate reoccurring miscarriages now. I think she said the 23rd or 25th May for my first appointment & it's with the girl's in the EAPU.

Not sure what it all means yet I'm guessing with them pin pointing possible reoccurring miscarriages it will push a few things forward rather than trying to conclude if that is the problem they are now investigating the possibility that it is. If that makes sense!
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Old Sep 5th, 2006, 21:34 PM   #20
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3rd May - Yes May

Feeling a little sad today ....

Finally got my '0' HCG result at 4 today after our ectopic pregnancy, I've coped pretty well considering. I went to pieces one weekend but knew I couldn't allow myself to carry on like that & picked myself up.

Today really got to me though. I don't know why it just did
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