Hey! What a good time for this thread to pop up!

I am currently sat here recovering from an operation!

Well I have been a sufferer for about 15 years now.It has made my life so miserable and I have no quality of life.Do you know what pisses me off the most is the fact that you look healthy so people think you're faking it all.

I am lucky in a way.I do have 4 beautiful kids.Although they came at a struggle.I sadly lost 9 babies in 12 years.I suffer from severe backache,bloating,IBS,leg pain,headaches,heavy and long periods and mild depression.The op I am recovering from is due to Endometriosis.I collapsed in agony last weds (thread in general chatter) and was rushed in to surgery Friday.They removed a huge cyst and part of my tube.I am no longer able to have kids but unlike some i am so very blessed.I have tried everything going but still no avail.I could do with advice.

Bit of a short post but cant sit here to long. xxxx

HUGE darling, I didn't realise you'd been back in hospital.

I think the "looking fine" bit is the worst. I remember overhearing my ex boyfriend telling some friends that had come over that I was faking and attention seeking. Nice. Basically I'd gone to bed in agony and that was the sympathy I got!

Wow, I sure can relate to the faking it, I used to leave school and everyone who knew it was 'girly' stuff had no sympathy but I wished it was just 'girly' stuff!!! (then I'd go home and be so sick for days, cramping and throwing up, pretty much every symptom of endo all at once!
I am so sorry 4thbump, and when you have endo, it's not just about getting pregnant, it's about feeling good! I know people with endo that have had kids but it's like you said, when your quality of life isn't where it could be, you're miserable anyway.

Hey ladies


Meli: I've heard of the Maca, but not the Immunocal...how's it helped?
Faerie: Do you have any suggestions of what helped you?

Does anyone have IBS like symptoms? I've been getting trapped wind, acid reflux, constipation etc, but the reason I think it may be linked to the endo...is that I think I'm having trouble with my Pouch of Douglas....the bit between holes, er downstairs...and it's making any exits from that area quite difficult...unless prune or fibre assisted.

And this maybe way way way too much tmi....but this feels like the only place I can ask.......as I regular checker or CM & CP, I've noticed that, er, inside feels swollen. Not sore, But just more constricted than before. Does that make sense? sorry. Not that I'm sure DF would complain, but it feels like that area is shrinking a bit, or growing a bit..depends on how you look at it.
Help!


Big

Hi Nicnac, I had a very swollen stomach almost looked like I was pregnant but I had the runs constantly rather than constipated. Anything I ate went straight through me. My gynae was convinced I had endo in my bowels. I stopped eating dairy, and although all the allergy tests said I wasn't allergic to it when I stopped eating it my problems went away.

The Zoladex really cleared up the endo, and although it is horrid (brings on a fake menopause to stop endo growing) it certainly seemed to do the trick. You can only go on it for short periods, as a method to "clear you" before ttc so unfortunately it's not a miracle cure.

I have found that accupuncture also really helped me.

Nicnac-Immunocal has helped me in so many ways! It wasn't an instant magical cure, nothing is...but over the few months taking it, I have increased energy and I also haven't had the issues during and before AF that I have had my whole time AFs prior. I used to get IBS type symptoms before and during Af, bloat, issues with emptying my bladder, and if there was a sickness going around, I would get it. I have had so many problems during AF I don't really know where to start with how I'm doing better! Those are the main ones, but I will say I was having the horrid bouts with acid reflux and horrible ulcerlike pains in my stomach. I have gone off of Ibuprofin because I developed a reaction to it due to the high amounts I was taking each month and now I only use 2-4 pamprin TOTAL during AF!!!
I clear out my uterus each month, not like before when I felt it just dragged on and I spotted before and after for days and days. I now start red and stop with very little brown spotting. I still have cramps but they are not nearly as horrible as before.
My hormones are more leveled, I'm not suffering the PMS I was before, I'm happy all the time, I don't feel the depression for 2 weeks per month, I SLEEP BETTER!

I don't want to sound like a commercial, but I want everyone to feel this way and not have to suffer!!!

Faerie, I haven't tried accupuncture. I love the testimonials though, I have heard of lots of ladies who have used it succesfully!

I used the Zoladex and I loved it but the side effects were poo!I now take Ibroprofen 400mg and paracetomol every 4 hrs and going back to hospital in a few weeks to start a new action plan.I suffer from Ibs syptoms also.The thing I hate is the bloated belly.I have worked hard to loose weight but find that hard.Size14 fall off me but 12's are to tight cos of the bloated tummy.I had acupuncture for IBS and that was fab so maybe I'll look into it for Endo x

wow cant believe how many of you have responded! this is great! its nice to have some support and offer support to others! meli tia i find your story about going all natural to be quite interesting! i havent heard of most of the stuff you are taking though lol do you live in the us? to be honest im looking forward to having surgery, i cant wait to be actually diagnosed with endo. im having the surgery as part of a fertility investigation, most of my symptoms point to endo and i too suffer from ibs symptoms. but mine, i can only go to the toilet 2 or 3 times a month (if you know what i mean) then a few days before my period i start to need to go abit more often, then on my 1st day of af it feels like i get period pains plus really really bad painful stomach cramps and then i get diarrhea which blood comes out to from my bowels. the pains last for a day or 2 and there really intense and horrible. im massively bloated a few days before my period but then once ive had diarrhea and that its completely flat again asif im completely flushed out. sorry if tmi!!! sarah your story is really sad. is that a picture of your daughter? shes beautiful! it must of been so hard for you i cant even imagine what you went through! i wish you all the luck in the world for your next pregnancy. faerie i agree with meli tia, your story is amazing! my periods started at a young age too. i was 13. i didnt quite pass out but i missed alot of school because i couldnt cope with my pains. id lie in bed crying with my water bottle not knowing what to do because it hurt when i lied still, sat up, stood up, sometimes i honestly felt like i was giving birth!!! i knew the pains wernt normal then and i kept going to see my gp who just put me on the pill because it was meant to help with the pains. i did help and i was on it for 5 years but gave me terrible migraines so came off it. im happy to hear you are now pregnant! and wish you the best for your pregnancy. nicnac im in exactly the same boat as you! have you got a date for your op? have you concieved before? i havent and ive been trying 2 and a half years. was having unprotected sex years before we actively started 'trying' though. before that it was just if it happens it happens. 4th bump i cant believe how many babies you have lost, each and every one must of been really hard for you, im so pleased for you that you have been blessed with 4 babies though! your right, unlike some of us you are blessed with those angels! how did your op go? are you still feeling sore from it? that seemed to take ages to type out! but theres so many on here now im excited!!!!

ohh and im currently 4 days late for af, im on my 6th round of clomid but took a test last night and it was negative. ive got a chest and throat infection at tho mo though could i be late due to that do you think?

Hey dinky! Glad to see you came back
Unfortunately with endo, AF can be late for no apparent reason. I sure hope it is something else, I mean pregnancy related!!
AF started for me when I was 12, actually just turned 12. I noticed there was a problem when I was about 14-15 and it just went on and on...
Yes, I am in the US dinky!
Ok, I worked really late and I should be in bed now......night girls!