Feb 1st, 2009, 08:58 AM
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| Mum (Mom) Active BnB Member  Join Date: Feb 2009 Location: I am from Glasgow Posts: 28 | Neurofibromatosis??? |
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Feb 1st, 2009, 17:23 PM
| #2 |
| Pregnant (Expecting) BnB Addict  Join Date: Mar 2008 Location: Hampshire UK Posts: 5,135 | |
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Feb 2nd, 2009, 08:43 AM
| #3 |
| Mum (Mom) Active BnB Member Join Date: Feb 2009 Location: I am from Glasgow Posts: 28 | |
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Feb 2nd, 2009, 10:58 AM
| #4 |
| Pregnant (Expecting) BnB Addict Join Date: Mar 2008 Location: Hampshire UK Posts: 5,135 | |
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Feb 2nd, 2009, 16:13 PM
| #5 |
| Mum (Mom) Active BnB Member Join Date: Feb 2009 Location: I am from Glasgow Posts: 28 | He was covered in Cafe Au Lait patches i think they called it & his family has a past with this  quite sad really |
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Feb 4th, 2009, 10:56 AM
| #6 |
| Mum (Mom) Active BnB Member Join Date: Nov 2008 Location: Bolton, Manchester Posts: 192 | |
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Feb 7th, 2009, 03:10 AM
| #7 |
| Mum (Mom) Active BnB Member Join Date: Feb 2009 Posts: 15 | |
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Oct 21st, 2009, 15:55 PM
| #8 |
| Mum (Mom) New BnB member Join Date: Oct 2009 Posts: 3 | Neurofibromatosis |
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Oct 22nd, 2009, 06:58 AM
| #9 |
| Mum (Mom) Active BnB Member Join Date: Feb 2009 Location: I am from Glasgow Posts: 28 | |
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Oct 24th, 2009, 10:10 AM
| #10 |
| Pregnant (Expecting) New BnB member Join Date: Oct 2009 Posts: 4 | Goodmorning! My son (also named Logan) has Neurofibromatosis. He is 7, and has had ALOT of problems in school. I kept being told its ADHD, and even got talked into giving him meds after not finding anything else to help. I new something else was up, so I took him to a new pediatrician, who as soon as he saw all his birthmarks (or so I was told they were all his life) that he needs to go for testing and MRI's and such. I just recently (within the past month) got results back telling me he has small tumors on his brain, which could definetlly be affecting his behaviour. I am just learning about NF as I go along, I dont know much, but as I read about it, Im finding not many people really know alot about it as it is SO different in each person. And you can't be sure of how severe it is or will be, its all mostly waiting and getting tests done I may not know all the answers to any questions you may have about it, but I would definetlly be a person who is going through the same thing. There are a few groups you can join with others who either have or their kids have NF (even on facebook). There is support out there, its just a matter of searching for it. You can google it, and maybe find something in or close to your area.  |
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