Hello ladies...I have a story to share and I just wanted to see if anyone is dealing or dealt with this before.

I have a son Jack who will be 5 months on the 19th. He has two older brothers. 4 and almost 2.

Jack was born 7 weeks premature and had many breathing problems and still to this day does. Other then that he was perfectly healthy.

Well on Novemeber 11th, 2009 he was laying on the kitchen table and his 2yr old brother pulled him off . he fell 3ft to the floor on the back of his head.

Long story short he was admitted to the hospital with a brain hemmorage in the front of his brain. He was there for 24 hours and did great. Neuro checks were perfect.

WE went home and he had a seizure a day later. He was put on meds and has had two since. He's still on the meds and his EEG was normal. He will be on meds for a few months at least.

Okay so at our last neuro appt the doctor had measured his head and it was 43.5 cm's. On the day of the accident his head was 41cm's. So they sent him for an MRI.

THe results were that he has fluid around his brain and also a small bleed in the brain. The neruologist said that they will just montior him closely and wait and see what happens.

Then on tuesday we had our follow up with the neurosurgeon that saw him in the hospital. I told him what the neurologist saw on the MRI and everything. They measuered his head and said it was 44.5cm's So thats another cm since 2 weeks ago.

He went and looked at the MRI and came back and talked to me.

He said that jack has fluid around the brain and that this may be from the fall but likely not. That it is causing his head to increase in size. He said that it's a mild form of hydropceplaus. That he isnt sure as of yet if he has it or not. He gave another long fancy name.....Beigne molprus early infancy...? Anyways he said that he will want to watch jack to see what his head does.

His neuro checks are perfect and he seems fine. Other then his bigger head.

He always has the bleed in the brain that is small and he said it will either reasorb back into the body or it will increase over time. He said there is no way to tell at this point and it could take months.

Jack goes back in 2 months to see him...unless I notice changes in Jack.

So Jack will need surgery to put in a shunt if this continues and then they would diagnose him with Hydropceplaus for the rest of his life.

Jacks head has grown since birth...11cm's! I was told normal growth is about 1cm's a month. So he's way overboard.

His head Circumference at
birth was 33cm's. At 2 months it was 39, then at the fall which was almost 4months old..was 41. now it's a month since the fall and it's 44.5cm's.

Everywhere I read they say if they go up 2 percentiles in the growth chart to be concerned.

Has anyone had a child with the extra fluid on brain and rapid head growth? or a child with Hydropcephalus? What was the outcome.

Any advice or anything would be great!

The only measurements the neurosurgeon has is the 41, 43.5, and 44.5cm. He doesnt have his birth or 2 month old. He Jack went from 25th percentile to almost 90th....

Please share your story or any advice would be great. Thanks so much for reading.

Anybody..

Hi hun i've no advise sorry but i didn't want to read and run, it sounds like little Jack is a fighter so far so i hope he will be fine, i to have a jack who was a preemie and he has a large head but this is due to been a preemie and also sossible hc.
Please keep us upto date with it all xx

Hi,

Our princess developed Hydrocephalus (fluid on the brain) and her head did get bigger and bigger until . Her head swelled gradually until it got to about the 92nd percentile.

It only became diagnosed when she went for a routine post discharge brain scan on 23 nov 2007 (she had two clusters of csyts on her brain from birth). The whole experience is in her Diary section of her website as we updated it all the time . we were given the good news that it had stopped getting bigger by a consultant Neurosurgeon in March 2008

The Doctors decided to give it more time before putting a shunt in, as they are for life, and we were lucky , it stopped getting any bigger from that point on. They took regular scans and as long as it was not exerting pressure on the brain they waited.

Her Ventricles will always be swollen but that does not matter for as her head grew it became less noticeable and she is now back to the 50th percentile.

Hydrocephalus does not always mean a shunt will be needed, it can resolve itself
so although she had it for a while she recovered from it.

I hope this helps

Hello

My little girl has Hydrocephalus. However hers is the more severe kind and she is shunted.

Hers was present from birth and will never get better.

I don't have much advice, since HC is entirely different if the severity is different.
Just wanted to wish you luck

When I was a baby they monitored my head growth thinking that I may have had it because my forehead purtruded(sp?) more than "normal" ANd had a small amout of liquid ANd in the end I was was absoloutly fine ANd I outgrew it...

goodluck to u ANd the little guy .

My son was born with hydrocephalus because he has spina bifida and the two tend to co e together. He also was shunted after a week

With any hydro, the decision to shunt or not is tough. Without one you risk brain damage caused by pressure. With one you risk blockages and infections. However, anyone with a shunt will tell you a horror story ar two about blocking, but they can be trouble free. Blockages and things can be spotted and dealt with effectively. The operation itself is pretty straightforward.

I hope things work out for your son x

Our daughter Daisy has Hydrocephalus. Her measurements were (and I won't put them all on cos she was measured weekly for ages!) 37.4 @ 12 days, 39.3 @ 4 weeks, 40.8 @ 9 weeks, 43 @ 12.5 weeks, 46 @ 18.5 weeks, 46 @ 21 weeks, 48.5 @ 29 weeks and 48.5 @ 34 weeks.

Daisy has not had to have a shunt put in and she's now 9 months old. At first they thought they'd have to, but left it and did an MRI. I am so glad they haven't shunted so far as we were told at her last appointment in Nov that although the ventricles are large she is stable.

So, hydrocephalus doesn't always mean a shunt - some cases are more servere than others. Big hope all is ok x

Meant to say - she started on 98th centile and is now just above 99.6th x

Thank you all for your wonderful advice and thoughts.

Thank you for sharing this! it has helped alot. So Jack's neurosurgeon says that he doesnt have hydropcepluas at this point...just saying external hydroceplaus as of right now...but here are his measurements.

33cm at birth(he was also 7weeks preemie), 39cm at 2months, 43.5cm at 4months and now 45.5cm and 5months....he went from 10percentile to 95th since birth. I would consider this WAY abnormal. If you put him on a preemie chart..he's way off the charts. and on the normal chart he's 95th or alil higher. I just dont get this...it keeps growing and going up and they aren't saying anything.

I think they just want to wait and see.

But he's still puking alot, sleeping alot, and he has had 3 seizures over the past three days and we just got out of the hospital today. But the CT isn't any worse so they wont do anything. Which I dont want the shunt if very needed.

When did they diagnose your daughter? did they say it was hydroceplaus and what did her scans show? Thank you so much for your story..I feel we can connect . xx to you. Is she mentally or physcially delayed at all?