Fluid around the brain possibly hydropcephlaus.Update. Page 2 - Page 3

Izzy'smummy · Feb 14th, 2010, 08:43 AM

Hi

I have been following your thread and thought that I would share my story.

Izzy was born Dec 07 weighing a whopping 10lb 9oz , her HC was 38cm at birth. At her 6 week check it had gone up to 42cm! We were refered to the paediatician at our local hospital where it was found she had enlarged lateral ventricles- they gave us a diagnosis of Benign External Hydrocephalus (BEH). We were also refered to a Neurosurgeon who agreed with the diagnosis and stated that apart from requiring a larger hat if she was to become a model there would be no other problems!!!!!!

Izzy is now just over 2 and developmentally she is fine, even a little brighter than her peers.She still has a big head but as she a big girl anyway!

I hope this may help you as I remember being so worried at the time before diagnosis.

http://www.facebook.com/home.php?#!/...7&id=678186337

If you would like to see some pics of Izzy now I have posted a link above.

HTH

Love Ellie xx

Gabrielle · Feb 14th, 2010, 11:03 AM

Quote:

Originally Posted by Izzy'smummy

Hi

I have been following your thread and thought that I would share my story.

Izzy was born Dec 07 weighing a whopping 10lb 9oz , her HC was 38cm at birth. At her 6 week check it had gone up to 42cm! We were refered to the paediatician at our local hospital where it was found she had enlarged lateral ventricles- they gave us a diagnosis of Benign External Hydrocephalus (BEH). We were also refered to a Neurosurgeon who agreed with the diagnosis and stated that apart from requiring a larger hat if she was to become a model there would be no other problems!!!!!!

Izzy is now just over 2 and developmentally she is fine, even a little brighter than her peers.She still has a big head but as she a big girl anyway!

I hope this may help you as I remember being so worried at the time before diagnosis.

http://www.facebook.com/home.php?#!/...7&id=678186337

If you would like to see some pics of Izzy now I have posted a link above.

HTH

Love Ellie xx

Thank you for your story, It was nice to hear something positive.

A few questions, how long did the neurosurgeon follow Izzy. Do you know where her head is on the growth charts at this point?

I think my situation is a bit different, since Jack has had two different brain bleeds plus the extra fluid as well as torritcollis and placelogeonaly.

Thanks again for sharing!

Izzy'smummy · Feb 14th, 2010, 13:11 PM

The doctors think Izzy's Increased head size may have happened due to a traumatic birth! Her head is 2cm above the 98th centile and has remained there since 6 weeks! She is now being followed up yearly by the paediatricians.

I have confirmed you as a friend on facebook.

I also have a 7 month old baby girl.

Please continue to ask any questions that you feel are relevent.

Love Ellie xx

Luzelle · Mar 11th, 2010, 01:33 AM

I have just read your story. You are such a great mom. Hope everything works out well for Jack and your family. Thanks for sharing.

Feb 14th, 2010, 08:43 AM	#21
Izzy'smummy Mum (Mom) Active BnB Member Join Date: Sep 2008 Location: Wiltshire.UK Posts: 98	Hi I have been following your thread and thought that I would share my story. Izzy was born Dec 07 weighing a whopping 10lb 9oz , her HC was 38cm at birth. At her 6 week check it had gone up to 42cm! We were refered to the paediatician at our local hospital where it was found she had enlarged lateral ventricles- they gave us a diagnosis of Benign External Hydrocephalus (BEH). We were also refered to a Neurosurgeon who agreed with the diagnosis and stated that apart from requiring a larger hat if she was to become a model there would be no other problems!!!!!! Izzy is now just over 2 and developmentally she is fine, even a little brighter than her peers.She still has a big head but as she a big girl anyway! I hope this may help you as I remember being so worried at the time before diagnosis. http://www.facebook.com/home.php?#!/...7&id=678186337 If you would like to see some pics of Izzy now I have posted a link above. HTH Love Ellie xx

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Feb 14th, 2010, 13:11 PM	#23
Izzy'smummy Mum (Mom) Active BnB Member Join Date: Sep 2008 Location: Wiltshire.UK Posts: 98	The doctors think Izzy's Increased head size may have happened due to a traumatic birth! Her head is 2cm above the 98th centile and has remained there since 6 weeks! She is now being followed up yearly by the paediatricians. I have confirmed you as a friend on facebook. I also have a 7 month old baby girl. Please continue to ask any questions that you feel are relevent. Love Ellie xx

Status: Offline

Mar 11th, 2010, 01:33 AM	#24
Luzelle Pregnant (Expecting) Active BnB Member Join Date: Feb 2010 Location: South Africa Posts: 843	I have just read your story. You are such a great mom. Hope everything works out well for Jack and your family. Thanks for sharing.

Status: Offline

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