Any mummies with cleft lip & palate babies? - Page 2

moo2 · May 18th, 2009, 04:58 AM

Hi Bex

Can't believe its been so long since I posted on here!

How are things? Hope you and Niamh are well?

Sorry to hear about the 2 ops, I know how you feel...

Miss Slater said it's unlikely they will be able to do the complete repair on George's lip in one go as his cleft is so wide and it will be several years before they do the second part. He is due to have his palate op at the end of this year or early next, then any palate and/or lip revision after that but its his bone graft op when he's about 8 which will be the most difficult to deal with as he'll be old enough to know whats going on.

Did you have a good holiday? Is the weaning getting any easier? We'll be starting that in 7 weeks....

George had his pre-op appointment at BCH last Wednesday... Only 12 days now until his op

I filled up just going through the procedure with the nurse so I think I'll be a complete wreck when it comes to the day!

I'll let you know how it all goes...

Love
Vickie & George xxxxxxxx

celine · May 18th, 2009, 08:03 AM

Hi everyone

I was born with a cleft lip & palate myself and have had the ops you talk about when I was a baby (ok it was years and years ago)
I had bone grafts done when i was 15 & 16 as the first one failed.

My dad was born without a nose - so there is some history in my family, im having a lil boy next mnth and so far nothing of that kind has been spotted on our scans - but I am always keeping an open mind.

cazza1982 · Jul 31st, 2009, 17:26 PM

Hi All,

I know it's been a while since this post was replied to, but just wanted to introduce myself really!

My little man will be born with bilateral cleft lip and palate which was diagnosed at 20wk scan.

I feel OK about it now, but getting a bit apprehensive in the lead up to birth. I am sure I will be of more use to you all once I have met the little fella and have gotten over the shock!

Hopefully speak to you all soon.

Big hugs

moo2 · Aug 2nd, 2009, 17:21 PM

Quote:

Originally Posted by cazza1982

Hi All,

I know it's been a while since this post was replied to, but just wanted to introduce myself really!

My little man will be born with bilateral cleft lip and palate which was diagnosed at 20wk scan.

I feel OK about it now, but getting a bit apprehensive in the lead up to birth. I am sure I will be of more use to you all once I have met the little fella and have gotten over the shock!

Hopefully speak to you all soon.

Big hugs

Great to hear from you!

My son also has a complete bilateral cleft lip & palate. If you want to ask me anything you're very welcome.

Hope it all goes well and lets us know when your little bundle arrives xxx

cazza1982 · Aug 3rd, 2009, 03:53 AM

Quote:

Originally Posted by moo2

Great to hear from you!

My son also has a complete bilateral cleft lip & palate. If you want to ask me anything you're very welcome.

Hope it all goes well and lets us know when your little bundle arrives xxx

Ah Thanks!

It is nice to find a thread specific to what our little bundles of love have so we have a base to ask questions! I am surprised that there isn't more ladies on BNB who are in the same situation.

Hopefully speak to you all soon.

xxxx

vinnypeanut · Oct 4th, 2009, 19:30 PM

Hi im expecting my first little blue bump and was told last week at my 20 week scan that my little man has a unilateral cleft lip on the left hand side...unsure yet wether palate is affected.
Im due to see the cleft team 2moro morning. Im scared but starting to get my head around it.
Just intruiged as to what they say 2moro
x

Angel269 · Dec 22nd, 2009, 15:50 PM

Hi. I am ttc # 1. I don't really know what to say. My husband was born with a cleft lip and his mum and brother with a cleft lip and palate. It will just be a waiting game for us (once I have conceived and when I get to the opportunity to have a scan). Our GP has said that we will most likely be able to have a 3D scan due to this reason.

I am very anxious and so is hubby-I just wondered if anyone here was expecting a child to be born with a cleft lip and/or palate due to family history or if it was very unexpected?

vinnypeanut · Dec 22nd, 2009, 15:55 PM

Angel we dont have any family history of clefts....in our case it was just one of those things.
I hope you get some good news but even if you dont things really arent as bad as they seem.
Admittedly its been hard and will only get harder but it isnt a permanent thing and is so easily fixed these days.
Try to stay optimistic and the best of luck with ttc xxx

becca_amanda · Nov 15th, 2010, 20:44 PM

Hi everyone, my son Daniel was born 19th September 2010 and he has a unilateral cleft lip and palate. I found out on my 20 week scan so it wasn't that much of a shock when he was born. It doesn't upset me at all the only thing that upsets me is thinking of what he'll have to go through in life. It gets a bit frustrating at times when he takes a while to feed (especially at 3am!!!) Haha. His first surgery date is 26th January 2011, that's to repair his lip, nose and hard palate. I was just wondering if your babies use dummies? My nurse told me he cant have one but i tried it and he seemed ok with it it fell out a lot though. Is there a special type of dummy he can have? Thanks girls xx

Celtic Dragon · Mar 19th, 2011, 18:26 PM

Quote:

Originally Posted by becca_amanda

Hi everyone, my son Daniel was born 19th September 2010 and he has a unilateral cleft lip and palate. I found out on my 20 week scan so it wasn't that much of a shock when he was born. It doesn't upset me at all the only thing that upsets me is thinking of what he'll have to go through in life. It gets a bit frustrating at times when he takes a while to feed (especially at 3am!!!) Haha. His first surgery date is 26th January 2011, that's to repair his lip, nose and hard palate. I was just wondering if your babies use dummies? My nurse told me he cant have one but i tried it and he seemed ok with it it fell out a lot though. Is there a special type of dummy he can have? Thanks girls xx

My baby was born on 21st November 2010 with a unilateral cleft lip. It's taking a while to get surgery as there's a bit of a waiting list in the South West at the moment. I'm a bit surprised there aren't more Mums with babies with this on here! We only found out when he was born, but probably because it's quite minor. He used to take ages to feed too, but nobody told me to expect that - I only found out when I sought help from a breastfeeding group.

We did use a dummy for a little while (stopped using it now because he couldn't keep it in and would cry more!) - it didn't occur to me that he might not be able to because of his lip...!

Hope all your operations went well - we're still waiting for a date for Rowan's...

May 18th, 2009, 04:58 AM	#11
moo2 Mum (Mom) Active BnB Member Join Date: Aug 2008 Location: Birmingham Posts: 645	Hi Bex Can't believe its been so long since I posted on here! How are things? Hope you and Niamh are well? Sorry to hear about the 2 ops, I know how you feel... Miss Slater said it's unlikely they will be able to do the complete repair on George's lip in one go as his cleft is so wide and it will be several years before they do the second part. He is due to have his palate op at the end of this year or early next, then any palate and/or lip revision after that but its his bone graft op when he's about 8 which will be the most difficult to deal with as he'll be old enough to know whats going on. Did you have a good holiday? Is the weaning getting any easier? We'll be starting that in 7 weeks.... George had his pre-op appointment at BCH last Wednesday... Only 12 days now until his op I filled up just going through the procedure with the nurse so I think I'll be a complete wreck when it comes to the day! I'll let you know how it all goes... Love Vickie & George xxxxxxxx

Status: Offline

May 18th, 2009, 08:03 AM	#12
celine Other BnB Elite Join Date: Jul 2008 Location: Netherlands Posts: 11,978	Hi everyone I was born with a cleft lip & palate myself and have had the ops you talk about when I was a baby (ok it was years and years ago) I had bone grafts done when i was 15 & 16 as the first one failed. My dad was born without a nose - so there is some history in my family, im having a lil boy next mnth and so far nothing of that kind has been spotted on our scans - but I am always keeping an open mind.

Status: Offline

Jul 31st, 2009, 17:26 PM	#13
cazza1982 Mum (Mom) Active BnB Member Join Date: Jun 2009 Location: Oxfordshire Posts: 334	Hi All, I know it's been a while since this post was replied to, but just wanted to introduce myself really! My little man will be born with bilateral cleft lip and palate which was diagnosed at 20wk scan. I feel OK about it now, but getting a bit apprehensive in the lead up to birth. I am sure I will be of more use to you all once I have met the little fella and have gotten over the shock! Hopefully speak to you all soon. Big hugs

Status: Offline

Oct 4th, 2009, 19:30 PM	#16
vinnypeanut Mum (Mom) Chat Happy BnB Member Join Date: Jul 2009 Posts: 1,223	Hi im expecting my first little blue bump and was told last week at my 20 week scan that my little man has a unilateral cleft lip on the left hand side...unsure yet wether palate is affected. Im due to see the cleft team 2moro morning. Im scared but starting to get my head around it. Just intruiged as to what they say 2moro x

Status: Offline

Dec 22nd, 2009, 15:50 PM	#17
Angel269 Pregnant (Expecting) Active BnB Member Join Date: Oct 2009 Location: Somerset, UK Posts: 27	Hi. I am ttc # 1. I don't really know what to say. My husband was born with a cleft lip and his mum and brother with a cleft lip and palate. It will just be a waiting game for us (once I have conceived and when I get to the opportunity to have a scan). Our GP has said that we will most likely be able to have a 3D scan due to this reason. I am very anxious and so is hubby-I just wondered if anyone here was expecting a child to be born with a cleft lip and/or palate due to family history or if it was very unexpected?

Status: Offline

Dec 22nd, 2009, 15:55 PM	#18
vinnypeanut Mum (Mom) Chat Happy BnB Member Join Date: Jul 2009 Posts: 1,223	Angel we dont have any family history of clefts....in our case it was just one of those things. I hope you get some good news but even if you dont things really arent as bad as they seem. Admittedly its been hard and will only get harder but it isnt a permanent thing and is so easily fixed these days. Try to stay optimistic and the best of luck with ttc xxx

Status: Offline

Nov 15th, 2010, 20:44 PM	#19
becca_amanda Mum (Mom) New BnB member Join Date: Nov 2010 Posts: 2	Hi everyone, my son Daniel was born 19th September 2010 and he has a unilateral cleft lip and palate. I found out on my 20 week scan so it wasn't that much of a shock when he was born. It doesn't upset me at all the only thing that upsets me is thinking of what he'll have to go through in life. It gets a bit frustrating at times when he takes a while to feed (especially at 3am!!!) Haha. His first surgery date is 26th January 2011, that's to repair his lip, nose and hard palate. I was just wondering if your babies use dummies? My nurse told me he cant have one but i tried it and he seemed ok with it it fell out a lot though. Is there a special type of dummy he can have? Thanks girls xx

Status: Offline

Similar Threads
Cleft lip & down's syndrome :\|	Teen Pregnancy
Cleft lip & down's syndrome :\|	Pregnancy - Second Trimester
10 month old cleft palate repair eats ALOT!	Baby Club
Cleft lip & pallet help please	Pregnancy - Third Trimester
Cleft lip and palet?	Baby Club

User Name		Remember Me?
Password