IVF - NHS waiting list?

kat08 · Jan 23rd, 2009, 15:30 PM

Hi all

Just wanted to do a quick poll of how long the IVF waiting list is in your area? I am thinking about whether I might need to start saving? I live in the South Manchester area and have just started treatment for PCOS. I know I have lots of tests to go through yet but I would like to be prepared.

Thanks

maz · Jan 23rd, 2009, 15:36 PM

I'm in Northern Ireland, and our waiting time last time I checked was around 13-16 months - and we only get one free cycle... It's going to be at least August before I get a letter of offer for treatment. We've been for one private cycle of IVF which sadly ended with an early MC, and we're now waiting to start our second cycle.

NHS sucks!!

kat08 · Jan 23rd, 2009, 15:47 PM

Doesn't it just - so sorry to hear about your m/c.

Do you know if there is certain criteria for the waiting list or if there are certain levels ie if you have X condition you go further up on wait list?

maz · Jan 24th, 2009, 02:55 AM

As far as I know, there's only one list. Whether you've endo, PCOS, poor sperm, or are unexplained, the waiting time is the same.

CurlySue · Jan 24th, 2009, 03:51 AM

Quote:

Originally Posted by maz

As far as I know, there's only one list. Whether you've endo, PCOS, poor sperm, or are unexplained, the waiting time is the same.

This is true, indeed, but these things are actually important as to when you actually get ON the list. For example, if you have no fertility problems diagnosed after investigations and you have only been trying for, say, 12 months, they will not put you onto an IVF waiting list until you have been trying for 24 months or, in some places, 36 months.

If you are diagnosed with endo, PCOS, sperm problems, etc, and if you have tried something like Clomid or IUI with no success then you can bypass their time rules.

The waiting lists depend on your area. Our waiting list is only three months long at present.

Helen_26 · Jan 24th, 2009, 05:25 AM

I'm in South Wales and once you have been approved for IVF there is a minimum 12month wait for treatment.

maz · Jan 24th, 2009, 05:36 AM

Quote:

Originally Posted by CurlySue

This is true, indeed, but these things are actually important as to when you actually get ON the list. For example, if you have no fertility problems diagnosed after investigations and you have only been trying for, say, 12 months, they will not put you onto an IVF waiting list until you have been trying for 24 months or, in some places, 36 months.

If you are diagnosed with endo, PCOS, sperm problems, etc, and if you have tried something like Clomid or IUI with no success then you can bypass their time rules.

The waiting lists depend on your area. Our waiting list is only three months long at present.

I agree with this. I stupidly thought after a year that if we just took a break and forgot about temping, OPKs, etc, that it would happen for us naturally. Needless to say it didn't. I don't know if I was scared that something would be wrong or scared about the investigations, but I definitely put it all off. But once we got going it took us 9 months from GP referral, to have all tests done, and receive confirmation that we were on the waiting list for IVF. Pity our waiting time is 13+ months ...

Helen · Jan 24th, 2009, 09:21 AM

Waiting time in our area was 3 years. We went on the IVF NHS waiting list when we started our private treatment 2 and a half years ago...not heard a thing about it.

I have a document (admittedly from 2005) which shows different PCTs and waiting times. If anyone wants a copy, PM me your email address and I'll send it to you.

H

xx

kat08 · Jan 24th, 2009, 15:19 PM

Hi Ladies

Thanks so much for your advice. It looks like it varies a lot between areas. I have PCOS and am currently on Metformin. Also having tubes tested and husband having tests too so perhaps move onto Clomid if Metforming doesn't work? Think I will start saving for IVF though in case Metformin/Clomid doesn't work.

rachelle1975 · Jan 25th, 2009, 05:41 AM

Hey Kat

I come under Kingston upon Thames PCT in Surrey and there is no wait for us for IVF treatment. Treatment will be within 6 months of seeing a consultant. Having said that - at our ACU, it covers surrey and london and the london part has a 2 year wait (although treatment tends to be in 12 months). We were told that it's the lack of staff that causes the delay.

A girl at my ACU started her 1st IVF cycle 4 months after she saw her consultant so that's not too bad. Hopefully, we will start our first cycle in June - want to get in before they change the number of ET from 2 to 1!! xx

Jan 23rd, 2009, 15:30 PM	#1
kat08 Pregnant (Expecting) Active BnB Member Join Date: Jul 2008 Posts: 343	IVF - NHS waiting list? Hi all Just wanted to do a quick poll of how long the IVF waiting list is in your area? I am thinking about whether I might need to start saving? I live in the South Manchester area and have just started treatment for PCOS. I know I have lots of tests to go through yet but I would like to be prepared. Thanks

Status: Offline

Jan 23rd, 2009, 15:36 PM	#2
maz Trying to conceive (TTC) BnB Addict Join Date: Feb 2008 Location: In IVF limbo ... Posts: 3,915	I'm in Northern Ireland, and our waiting time last time I checked was around 13-16 months - and we only get one free cycle... It's going to be at least August before I get a letter of offer for treatment. We've been for one private cycle of IVF which sadly ended with an early MC, and we're now waiting to start our second cycle. NHS sucks!!

Status: Offline

Jan 23rd, 2009, 15:47 PM	#3
kat08 Pregnant (Expecting) Active BnB Member Join Date: Jul 2008 Posts: 343	Doesn't it just - so sorry to hear about your m/c. Do you know if there is certain criteria for the waiting list or if there are certain levels ie if you have X condition you go further up on wait list?

Status: Offline

Jan 24th, 2009, 02:55 AM	#4
maz Trying to conceive (TTC) BnB Addict Join Date: Feb 2008 Location: In IVF limbo ... Posts: 3,915	As far as I know, there's only one list. Whether you've endo, PCOS, poor sperm, or are unexplained, the waiting time is the same.

Status: Offline

Jan 24th, 2009, 05:25 AM	#6
Helen_26 Trying to conceive (TTC) Active BnB Member Join Date: Oct 2007 Location: Llanelli, South Wales Posts: 659	I'm in South Wales and once you have been approved for IVF there is a minimum 12month wait for treatment.

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Jan 24th, 2009, 09:21 AM	#8
Helen Other BnB Addict Join Date: Aug 2006 Posts: 3,833	Waiting time in our area was 3 years. We went on the IVF NHS waiting list when we started our private treatment 2 and a half years ago...not heard a thing about it. I have a document (admittedly from 2005) which shows different PCTs and waiting times. If anyone wants a copy, PM me your email address and I'll send it to you. H xx
Helen Other BnB Addict Join Date: Aug 2006 Posts: 3,833
Status: Offline

Jan 24th, 2009, 15:19 PM	#9
kat08 Pregnant (Expecting) Active BnB Member Join Date: Jul 2008 Posts: 343	Hi Ladies Thanks so much for your advice. It looks like it varies a lot between areas. I have PCOS and am currently on Metformin. Also having tubes tested and husband having tests too so perhaps move onto Clomid if Metforming doesn't work? Think I will start saving for IVF though in case Metformin/Clomid doesn't work.

Status: Offline

Jan 25th, 2009, 05:41 AM	#10
rachelle1975 Mum (Mom) BnB Addict Join Date: Apr 2008 Location: Surrey Posts: 9,105	Hey Kat I come under Kingston upon Thames PCT in Surrey and there is no wait for us for IVF treatment. Treatment will be within 6 months of seeing a consultant. Having said that - at our ACU, it covers surrey and london and the london part has a 2 year wait (although treatment tends to be in 12 months). We were told that it's the lack of staff that causes the delay. A girl at my ACU started her 1st IVF cycle 4 months after she saw her consultant so that's not too bad. Hopefully, we will start our first cycle in June - want to get in before they change the number of ET from 2 to 1!! xx

Status: Offline

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