My Dr. wont change my medication..why?

helen1234 · Feb 14th, 2010, 15:37 PM

^^^^^ i have absolutely no idea hunni why that would happen, you sure its not a implant bleed it can happen.

i ovulated on my own without drugs for the first time in 5 yrs i was in total shock with the cbfm and i have to say with it being valentines i've been taking advantage of the romance

3yearsttc · Feb 15th, 2010, 23:47 PM

I have high prolactin levels and my cycles have been shorter than normal too. they are also usually late. And I do have a pituitary tumor.

MarsMaiden · Feb 18th, 2010, 08:08 AM

Helen1234 - Thank you. An implantation bleed crossed my mind briefly but then reality took hold, I know I didn't ovulate and the bleed was way too long and heavy. But I am trying to be positive and thinking that maybe it was my body's way of pressing the reset button and that things will now get back to normal... *hopes*

I had my injection training yesterday so was finally able to get a bit more information. Turns out the levels at my last blood test were 872 so at least not earth shatteringly high. I talked the nurse into taking some more blood there and then too so I should have the repeat results next week.

Unfortunately they really do not seem to know very much about raised prolactin and how it might affect TTC. She did not know whether or not we'd be able to carry on with the IUI program if my repeat test shows raised levels again but she did say that she would speak to the consultant and check.

So I am back to the waiting game again but at least things are moving now... I will keep you all updated with my results next week!

JFansler1 · Jul 29th, 2010, 23:29 PM

Quote:

Originally Posted by 3yearsttc

Hello all! I'm new here, and came in hoping to find some other members with the same prolactin level issues as mine. After living abroad, we've been trying to conceive for 2 years (before this I had two miscarriages about 4 years ago

), then I ran a marathon and took a year off ttc. I went to two different infertility experts, the first wanted to give me a blood transfusion claiming that I had some kind of allergic reaction to my husband! And the second, after making me take many tests gave me 2 iui's and neither of them worked. Now I'm trying a new expert (seems better) and it turns out my prolactin levels were high. I've been taking 1/2 cabergoline pills twice a week for two weeks, and my levels went down. She says I can try iui again during my next period, which is about to start. I'm wondering how long it might take to get pregnant, and whether my original miscarriages could've been caused by this. I also recommend doing an MRI - they found a small tumor in my pituitary gland too, which is important to follow up on)... I can't wait to have a

! All my friends are conceiving and I even convinced my husband to move away with my job to avoid the pressure.

Hi! I'm new here too. Just wanted to tell you my story... I was diagnosed with a pituitary adenoma when I was 18, since then I've been on dostinex and I had the endoscopic surgery to have my tumor removed. I got pregnant six months after my surgery. But have also heard of numerous people getting pregnant with just the meds and not the surgery. As soon as I stopped worrying about getting pregnant, it happened.

not2lucky09 · Jan 8th, 2011, 18:49 PM

HELLO EVERY1 MY PROLACTIN LEVELS R HIGH AND IVE BEEN ON BROMOCRIPTINE FOR NEARLY 2.5 YEARS WITH NO LUCK. LASY YEAR I CONCIEVED BUT LOST IT DUE TO A ECTOPIC PREGNANCY

AND LOST MY LEFT TUBE AS A RESULT. MY DR. WONT CHANGE MY MEDICATION FROM BROMOCRIPTINE TO CABERGOLINE..I WONDER WHY WHY WHY???? WHAT SHOULD I DO? HAS ANY1 BEEN LUCKY WITH EITHER MEDICATION. I HAVENT SEENED A MENSTRUATION SINCE AUGUST 29...

Mummytofour · Jan 9th, 2011, 05:56 AM

Hiya and sorry for your loss.
Most gp's tend to use bromocriptine for two reasons,
1 It has been extensively trialled in pregnancy whereas cabergoline has not.
2 Cabergoline is much more expensive.

Do u still have your prolactin levels checked regularly? It may be advisable to stop treatment for a month or so and see what happens to your cycle naturally, then repeat bloods etc?

I fought with my gp with prolactin levels for 9 years then finally turned the conversation to a fertility problem NOT just prolactin. After 2.5 years they have to refer you under NICE guidelines.

Arm yourself with as much info as possible for your next consult and demand he refers you. Just asking or being compliant seems to get nowhere these days I'm afraid!

Good luck and let us know how you get on.

babybirdangel · Apr 28th, 2011, 12:29 PM

Hello Ladies! I also just found out that I had high prolactin levels. The doctor prescribed cabergoline. Hopefully this will help lower my levels. I wish you well and pray that everything works for you.

hypnorm · Apr 28th, 2011, 12:35 PM

I've just had my review and my prolcatin is normal 1yr after stopping breastfeeding, consultant says i may not need further meds, but will have another blood test in about 6 months.

nessa1122 · May 3rd, 2011, 09:33 AM

hi im new to this but im so glad iv found people who are going through the same thing as me, its good to have someone to talk to who understands me, i have a high prolactin level and iv had it for over a year now, but my doctor just keeps sending me for blood tests and not really helping me at all with information and things, i also leak milk all the time and have done for the past year, my levels were over 1000 a year ago but are now 500, since iv been off the pill, my high levels are caused by my benign tumor, i had a period for 5 months non-stop, it really got me down and felt so upset. but now they are all messed up and not regular at all. does anyone no what the normal level is?

hypnorm · May 3rd, 2011, 09:35 AM

not many doctors understand prolactinoma, as soon as my doctor suspencted it i was refered to an endocrinologist, was put on medication and sent for an Mri scan.

Feb 14th, 2010, 15:37 PM	#31
helen1234 Trying to conceive (TTC) BnB Addict Join Date: Jun 2008 Location: Dudley Posts: 7,833	^^^^^ i have absolutely no idea hunni why that would happen, you sure its not a implant bleed it can happen. i ovulated on my own without drugs for the first time in 5 yrs i was in total shock with the cbfm and i have to say with it being valentines i've been taking advantage of the romance

Status: Offline

Feb 15th, 2010, 23:47 PM	#32
3yearsttc Trying to conceive (TTC) Active BnB Member Join Date: Feb 2010 Location: Washington, DC Posts: 128	I have high prolactin levels and my cycles have been shorter than normal too. they are also usually late. And I do have a pituitary tumor.

Status: Offline

Feb 18th, 2010, 08:08 AM	#33
MarsMaiden Pregnant (Expecting) Active BnB Member Join Date: Oct 2009 Posts: 339	Helen1234 - Thank you. An implantation bleed crossed my mind briefly but then reality took hold, I know I didn't ovulate and the bleed was way too long and heavy. But I am trying to be positive and thinking that maybe it was my body's way of pressing the reset button and that things will now get back to normal... hopes I had my injection training yesterday so was finally able to get a bit more information. Turns out the levels at my last blood test were 872 so at least not earth shatteringly high. I talked the nurse into taking some more blood there and then too so I should have the repeat results next week. Unfortunately they really do not seem to know very much about raised prolactin and how it might affect TTC. She did not know whether or not we'd be able to carry on with the IUI program if my repeat test shows raised levels again but she did say that she would speak to the consultant and check. So I am back to the waiting game again but at least things are moving now... I will keep you all updated with my results next week!

Status: Offline

Jan 8th, 2011, 18:49 PM	#35
not2lucky09 Trying to conceive (TTC) New BnB member Join Date: Jan 2011 Posts: 1	My Dr. wont change my medication..why? HELLO EVERY1 MY PROLACTIN LEVELS R HIGH AND IVE BEEN ON BROMOCRIPTINE FOR NEARLY 2.5 YEARS WITH NO LUCK. LASY YEAR I CONCIEVED BUT LOST IT DUE TO A ECTOPIC PREGNANCY AND LOST MY LEFT TUBE AS A RESULT. MY DR. WONT CHANGE MY MEDICATION FROM BROMOCRIPTINE TO CABERGOLINE..I WONDER WHY WHY WHY???? WHAT SHOULD I DO? HAS ANY1 BEEN LUCKY WITH EITHER MEDICATION. I HAVENT SEENED A MENSTRUATION SINCE AUGUST 29...

Status: Offline

Jan 9th, 2011, 05:56 AM	#36
Mummytofour Mum (Mom) Active BnB Member Join Date: Feb 2010 Location: Scotland Posts: 700	Hiya and sorry for your loss. Most gp's tend to use bromocriptine for two reasons, 1 It has been extensively trialled in pregnancy whereas cabergoline has not. 2 Cabergoline is much more expensive. Do u still have your prolactin levels checked regularly? It may be advisable to stop treatment for a month or so and see what happens to your cycle naturally, then repeat bloods etc? I fought with my gp with prolactin levels for 9 years then finally turned the conversation to a fertility problem NOT just prolactin. After 2.5 years they have to refer you under NICE guidelines. Arm yourself with as much info as possible for your next consult and demand he refers you. Just asking or being compliant seems to get nowhere these days I'm afraid! Good luck and let us know how you get on.

Status: Offline

Apr 28th, 2011, 12:29 PM	#37
babybirdangel Trying to conceive (TTC) Active BnB Member Join Date: Feb 2011 Location: Tulsa Oklahoma Posts: 23	Hello Ladies! I also just found out that I had high prolactin levels. The doctor prescribed cabergoline. Hopefully this will help lower my levels. I wish you well and pray that everything works for you.

Status: Offline

Apr 28th, 2011, 12:35 PM	#38
hypnorm Pregnant (Expecting) BnB Addict Join Date: Sep 2006 Location: Stroud, Gloucester Posts: 4,505	I've just had my review and my prolcatin is normal 1yr after stopping breastfeeding, consultant says i may not need further meds, but will have another blood test in about 6 months.

Status: Offline

May 3rd, 2011, 09:33 AM	#39
nessa1122 Other New BnB member Join Date: May 2011 Posts: 1	hi im new to this but im so glad iv found people who are going through the same thing as me, its good to have someone to talk to who understands me, i have a high prolactin level and iv had it for over a year now, but my doctor just keeps sending me for blood tests and not really helping me at all with information and things, i also leak milk all the time and have done for the past year, my levels were over 1000 a year ago but are now 500, since iv been off the pill, my high levels are caused by my benign tumor, i had a period for 5 months non-stop, it really got me down and felt so upset. but now they are all messed up and not regular at all. does anyone no what the normal level is?

Status: Offline

May 3rd, 2011, 09:35 AM	#40
hypnorm Pregnant (Expecting) BnB Addict Join Date: Sep 2006 Location: Stroud, Gloucester Posts: 4,505	not many doctors understand prolactinoma, as soon as my doctor suspencted it i was refered to an endocrinologist, was put on medication and sent for an Mri scan.

Status: Offline

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