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Old Feb 4th, 2010, 10:25 AM   #11
Mummytofour
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Hi
I'm a newbie here too, but have had raised prolactin for nearly nine years!
It has ranged from borderline to 1800!
I have four kids ranging from nearly ten to nearly 3yo, so my levels must vary month to month.

I underwent an MRI but they found nothing and my peripheral vision has never been affected which can indicate a growth on the pituitary.

The only advise I can give is keep bugging your GP! I booked my own blood tests with the practice nurse, then let the doc know! Cheeky huh?!
At the end of the day, us ladies know our own bodies better than any GP and must insist they take us seriously. If two blood tests show consistent high results, insist on a referral to an endocrinologist as these are the real experts in their field.
I played on the fact that due to my medical history, (pelvic and spinal fracture), I was at increased risk of osteoporosis due to high prolactin.
High Prolactin also causes decreased oestrogen and low progesterone, meaning you may not ovulate and the lining of your uterus may not build up sufficiently to secure a foetus.

I had a miscarriage in Oct 09 due to low progesterone and Doc finally prescribed Bromocriptine in January 2010!! Still not managed to get that BFP but my last cd21 test showed 38 progesterone level which proves I did ovulate!

Just had full bloods done again today to get a baseline reading again for Prolactin to see if all my hormones are okay now....will let you know how I get on.

So....sorry for the long post, got a bit carried away!!! Don't worry about your levels, because with a bit of persuasion from you, your GP can prescribe a number of drugs that will work, although normally it takes 4-6 weeks to get the correct dosage.
I am proof that you can conceive AND carry to term, so don't worry...stress makes it worse!!! Good Luck!


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Old Feb 4th, 2010, 20:38 PM   #12
3yearsttc
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Thanks Helen


Thank you for your answer! It feels like time moves so slowly when you're TTC. How long did it take you to conceive once you started the prolactin medication? It's incredible I've been TTC for two years without knowing. There must be so many people with this issue who don't realize it!


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Old Feb 4th, 2010, 21:39 PM   #13
3yearsttc
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Mars Maiden?


I would like to know whatever happened to Mars Maiden. Was she eventually able to conceive?


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Old Feb 5th, 2010, 06:20 AM   #14
helen1234
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Quote:
Originally Posted by 3yearsttc View Post
Thank you for your answer! It feels like time moves so slowly when you're TTC. How long did it take you to conceive once you started the prolactin medication? It's incredible I've been TTC for two years without knowing. There must be so many people with this issue who don't realize it!
it took me 6 months with clomid hun. but 3 yrs to find i had high/raised prolactin

currently my level was 427, is this borderline


 
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Old Feb 5th, 2010, 14:26 PM   #15
misskat29
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Hi,

I posted on here the other day about my raised prolactin levels:

Dec 09 - 643
Jan 10 -1340

When i posted, i wrote telling you how my GP had referred me to a specialist. So i went Tuesday and was really annoyed as all he did was take more blood from me.

So, this morning the specialist called me with the blood results. and you'll never guess what my prolactin is now..............wait for it.......250!!! YES 250!!

I could not believe it when he said. I commented to him how mad it is for that single hormone to fluctuate so much in a space of three months, and he said it is perfectly normal.

The time for concern is when the prolactin remains elevated for months on end and stays up in the 1000's.

What i think i'm trying to say is get your doc to keep track on them, and try not to stress as this has an effect on it (i know its easier said than done, but i was V stressed in Jan when i went for my second blood tests, as i had just found out i have pcos - and look what it did to them!)

Now i just have to tackle my pcos and i should get my bfp again soon.

All the best you x


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Old Feb 5th, 2010, 16:54 PM   #16
underthestars
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Thank you!


Thank you! this thread has made me feel so much better. I have high prolactin (760) this is only from one blood test. Having cd21s on monday so maybe will see then.

Anyway I am convinced mine is stress - and that it's the cause of my sometimes (but not always) irregular periods. Doc has been useless on this just saying it is high but has referred us on to the ivf clinic and also me to the obg clinic (which i am surprised is a different place for me) for them to look into it. Had an ultrasound which came back fine. Now having reflexology to calm my sen down!

It's just made me feel ace that people have a) managed to concieve with 'out of range' levels (I was told it would be pretty impossible - which didn't affect our circumstances but was still a little gutting to hear) and b) that you can affect you levels so much.


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Old Feb 5th, 2010, 17:38 PM   #17
misskat29
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underthestars - i started accu & refloxology monday. and made me feel loads better. hoping it sorts my cycles and pcos out now.


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Old Feb 8th, 2010, 08:26 AM   #18
MarsMaiden
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WOW, thank you to everyone, all your replies have been so helpful!

3yearsttc - I am not sure if high prolactin would have been responsible for your m/c as I understand that it affects ovulation and the ability of the egg to implant, I am not sure what its role is in early pregnancy... Good luck with your IUI, do you have a date yet?

mummytofour - that was great information, thank you! It is great to hear that a BFP is possible even with such fluctuating levels!

misskat29 - that is fantastic news! I can't believe it dropped so low so quickly! FX that this means your BFP is not far away now

My appointment at the clinic is next Tuesday, it can't come quickly enough for me! It is just for injection training for my IUI (although I think that will probably be put off now) but I hope that they will answer some of my questions and I'll find out what the actual level was. I am also going to push to make sure that they get the request out for the repeats so that they can be done on my next cycle rather than having to wait an extra month. Does anyone know if prolactin has to be tested on cd3 or can it be done at any time of the cycle?

Interestingly, I know that I have not ovulated this month and my skin is absolutely horrid with acne, I assume this is as a result of the prolactin and is something I can look out for in future...


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Old Feb 8th, 2010, 09:46 AM   #19
Mummytofour
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MarsMaiden good luck with your appointment on Tuesday! You'll be an expert injector in no time!!! LOL!
I asked my GP the very same question re timings for blood tests for prolactin, and he said as long as the lab know what cycle day it was, they can interpret it correctly.
I do however always try to have bloods taken cd3, cd7 and cd21 as I request a full blood screening to rule out probs with TSH, FSH and LH etc...
My MCH and Folate levels were all screwy too, so I believe that just taking one hormone level into account doesn't always give a true picture of whats going on?

A quick update on me I got my prolactin results back on Friday after test on Thursday...down from 987 to 87!!!!!
Even my GP was over the moon!!!
So we've started the already!


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Old Feb 8th, 2010, 10:20 AM   #20
helen1234
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Quote:
Originally Posted by Mummytofour View Post
MarsMaiden good luck with your appointment on Tuesday! You'll be an expert injector in no time!!! LOL!
I asked my GP the very same question re timings for blood tests for prolactin, and he said as long as the lab know what cycle day it was, they can interpret it correctly.
I do however always try to have bloods taken cd3, cd7 and cd21 as I request a full blood screening to rule out probs with TSH, FSH and LH etc...
My MCH and Folate levels were all screwy too, so I believe that just taking one hormone level into account doesn't always give a true picture of whats going on?

A quick update on me I got my prolactin results back on Friday after test on Thursday...down from 987 to 87!!!!!
Even my GP was over the moon!!!
So we've started the already!
thats fab news
does anyone know what levels should be?


 
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