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Been advised to see fs about endrometriosis

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Old Nov 27th, 2009, 20:22 PM   #11
Dancingkaty1
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managed to get an earlier appointment to see my fs to discuss a lap & dye...see her on the 7th dec....hoping there isnt a huge waiting list to have it done!! xx
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Old Nov 28th, 2009, 13:50 PM   #12
muncho
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good luck, hopefullly they wil be bale to sort out anu problems if there are any, if not then at leats u know there is nothing internal..good luck x
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Old Dec 1st, 2009, 14:07 PM   #13
myboo1971
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Hey Katy, I have severe endo. Had laparoscopy in April this year where alot was removed except for what's on my ovaries. I have two endometriomas on my ovaries which were drained of the yucky stuff but they were not able to remove them completely. Hence, they've now filled back up again and my ovaries are actually stuck together (called "kissing ovaries). Symptoms have been all of the above from Baby Christie but from my research I gather that the pain does not necessary relate to the severity of the endo. Everyone's different.
So go for it. The lap and dye is not that bad. I'm having open surgery in January to separate my ovaries and clean up the new endo regrowth. I'm cacking myself about it but I'd go through anything to realise the dream of having a little one.
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Old Dec 1st, 2009, 14:10 PM   #14
Dilek
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Quote:
Originally Posted by myboo1971 View Post
Hey Katy, I have severe endo. Had laparoscopy in April this year where alot was removed except for what's on my ovaries. I have two endometriomas on my ovaries which were drained of the yucky stuff but they were not able to remove them completely. Hence, they've now filled back up again and my ovaries are actually stuck together (called "kissing ovaries). Symptoms have been all of the above from Baby Christie but from my research I gather that the pain does not necessary relate to the severity of the endo. Everyone's different.
So go for it. The lap and dye is not that bad. I'm having open surgery in January to separate my ovaries and clean up the new endo regrowth. I'm cacking myself about it but I'd go through anything to realise the dream of having a little one.
Hey hun

Im sorry about the kissing ovaries, does it hurt? Ive got sever endo and had my lap last week. I had some major work and grateful it wasnt open surgery. Ive had open surgery last yr, if u have any questions ask away. I hope your recovery will be quick and the sugery is a sucess!
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Old Dec 1st, 2009, 14:21 PM   #15
myboo1971
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Quote:
Originally Posted by Dilek View Post
Quote:
Originally Posted by myboo1971 View Post
Hey Katy, I have severe endo. Had laparoscopy in April this year where alot was removed except for what's on my ovaries. I have two endometriomas on my ovaries which were drained of the yucky stuff but they were not able to remove them completely. Hence, they've now filled back up again and my ovaries are actually stuck together (called "kissing ovaries). Symptoms have been all of the above from Baby Christie but from my research I gather that the pain does not necessary relate to the severity of the endo. Everyone's different.
So go for it. The lap and dye is not that bad. I'm having open surgery in January to separate my ovaries and clean up the new endo regrowth. I'm cacking myself about it but I'd go through anything to realise the dream of having a little one.
Hey hun

Im sorry about the kissing ovaries, does it hurt? Ive got sever endo and had my lap last week. I had some major work and grateful it wasnt open surgery. Ive had open surgery last yr, if u have any questions ask away. I hope your recovery will be quick and the sugery is a sucess!
Thanks Dilek, pain is certainly not as bad as before the laparoscopy in April. Which means the other endo that they took away must have been causing the really awful pain (you know the one that makes you wish you could just lie down and die!!), so I'm grateful for that. I'm worried about the recovery time and how much time I'll need of work. Also, I know this sounds stupid, but I'm a little upset about having the surgery scar. I've got other problems which is causing me lose my hair at the moment. Can't get to the bottom of it. So with the endo, 8 years trying to conceive, going bald etc etc, I'm not feeling too great about myself at the moment. OMG, I'm so depressing. Did I send you to sleep
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Old Dec 1st, 2009, 17:07 PM   #16
Dilek
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Quote:
Originally Posted by myboo1971 View Post
Quote:
Originally Posted by Dilek View Post
Quote:
Originally Posted by myboo1971 View Post
Hey Katy, I have severe endo. Had laparoscopy in April this year where alot was removed except for what's on my ovaries. I have two endometriomas on my ovaries which were drained of the yucky stuff but they were not able to remove them completely. Hence, they've now filled back up again and my ovaries are actually stuck together (called "kissing ovaries). Symptoms have been all of the above from Baby Christie but from my research I gather that the pain does not necessary relate to the severity of the endo. Everyone's different.
So go for it. The lap and dye is not that bad. I'm having open surgery in January to separate my ovaries and clean up the new endo regrowth. I'm cacking myself about it but I'd go through anything to realise the dream of having a little one.
Hey hun

Im sorry about the kissing ovaries, does it hurt? Ive got sever endo and had my lap last week. I had some major work and grateful it wasnt open surgery. Ive had open surgery last yr, if u have any questions ask away. I hope your recovery will be quick and the sugery is a sucess!
Thanks Dilek, pain is certainly not as bad as before the laparoscopy in April. Which means the other endo that they took away must have been causing the really awful pain (you know the one that makes you wish you could just lie down and die!!), so I'm grateful for that. I'm worried about the recovery time and how much time I'll need of work. Also, I know this sounds stupid, but I'm a little upset about having the surgery scar. I've got other problems which is causing me lose my hair at the moment. Can't get to the bottom of it. So with the endo, 8 years trying to conceive, going bald etc etc, I'm not feeling too great about myself at the moment. OMG, I'm so depressing. Did I send you to sleep
I didnt want to mention it in my earlier post but it took me a long time to recover from the open surgery. Maybe 4 weeks till i was walking ok without bending over. My back was in constant pain because i was unable to stand straight. OMG going to the loo, ohh and then just using my abs to sit up took like the 4 week mark. I would say it took me 2 months to be ok. Im sorry its scay but thats my experience. I stayed in hospital for 3 nights.

The scar, well the scar they dont tell u about that. My scar is quite neat, you cant tell when ur wearing a bikini BUT BUT!!!! if you hold some fat in your lower stomach, well its funny how can i explain, below the scar its pulled quite tight and there is hardly any fat but because of the tightness above the scar the fat kinda flops over. (you kinda have a mini roll) Its really hard to explain and if you have any girlfriends thats had a c - section they can show u. LOL

Is there any way they can do keyhole than open???? My recent surgery was major but they did it via keyhole. The reason i had open was because of 5 dermoid cysts a size of an orange each attached to my left ovary. The surgeon was unable to suck the crap out via keyhole and then they had to open me up. OPEN surgery should only be last resort. I will fight with any surgeon if they dont consider kehole first.

Sorry about the lecture, its just my personal experience.

BTW i was one of the lucky girls at the beginging u had no symptoms at all. But my endo appeared in 4 months and it was graded 4 Ive had endo only for 1 year
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Old Dec 1st, 2009, 17:38 PM   #17
RebaRezzelba
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Hi Dancingkaty

Well glad you have an earlier appointment with the FS to discuss lap&dye. That is my fear too - that I have endo - i have the lower backache, the heavy periods, the clots, the black/brown discharge, bowel problems, the list goes on - I went to the FS in June and endo wasnt even mentioned - she just put me on the IVF waiting list - im annoyed now that I didnt ask more when I was there about what could be causing my infertility - can i make another appointment with the FS I wonder? It will prob take another 6 months. By that stage my IVF waiting will be over -but I dont want IVF - only as a last resort.

I think after christmas I will take charge of my fertility and go to the doctor and see what the next step is for me - that will be exactly 2 years actively trying (and an extra year NTNP - so 3 years total....)

Now im sipping my raspberry leaf tea (to help with the sluggish uterus)....
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