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Old Dec 28th, 2009, 18:32 PM   #11
Foogirl
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Quote:
Originally Posted by nkbapbt View Post
A lot of the medical supplies you need are NOT covered. Like his pump wouldnt have been covered if we didnt get on to the program we are on...and thats like $1500! And a monthly cost for supplies are like $500, every month. And the only reason we got in is because they played up his brain bleed and how his outcome was uncertain. If we were to have to apply now we would not get it because its clear he has no issues from it but when we left the hospital they applied for us and we were approved because we didnt know how well or poorly he would develop.

So if say another family with a baby who was born with only swallowing issues, they would NOT qualify for funding.
Wow, I didn't know that. So do you still need to carry some kind of medical insurance? Are there many situations where thinks like this might happen?

For all people complain about our NHS, I am so glad we have it. I've never really used it much, except for general check ups and having my wisdom teeth out, but ye ghads we got our money's worth with Abby.

I just can't imagine having to go through the NNICU experience whilst worrying about the bill at the end of it.


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Old Dec 28th, 2009, 19:01 PM   #12
nkbapbt
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There are a lot of situation where it happens. It usually happen to middle class families who make over a certain amount. You don't pay for your NICU stay but what comes after if your baby still needs certain medical equipment/supplies if your insurance does not cover it you have too. We dont have special insurance, because Im a stay at home mom and my hubby is self employed. Even still most insurance won't cover everything.

Basically they made it to seem like Lakai would have how do I put this...disabilities or issues when he was older or even now. If he had say a Grade II bleed they would not have approved us, even if he did have a g-tube. It was the fact he had a Grade IV that got us in and even that was barely enough.

Its sad really.

The program is great though and it doesnt depend on your income, anyone of any "class" can apply and be approved. Its a matter of your childs needs and not if you can meet them yourself or not.

We don't pay for things like OT's and such. That's all covered. And if we wanted too we could claim disability for Lakai and get payments to cover his care, but to me that seems like cheating because he is not disabled even if he has certain things that qualify him like his bleed and his g-tube, and the fact his basic care requires more then 2-3 hours a day more than an "average" baby.

I always feel terribly sorry for people in the USA who sometimes DO have to pay for their NICU stays...Ive read horrible stories about families losing their homes, and so on. I cannot imagine that.


 
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Old Dec 29th, 2009, 09:42 AM   #13
bumpsmum
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thank god for NHS, we would never have managed if we had to pay!


 
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Old Dec 29th, 2009, 12:14 PM   #14
premmiemum123
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Praise be the NHS! I don't know what we would have done if we had to pay for it. Added stress.


 
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Old Dec 30th, 2009, 06:52 AM   #15
AtomicPink
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here here!


 
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Old Dec 30th, 2009, 19:24 PM   #16
Logiebear
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We had the scbu midwives/nurses visit us at home for 7 weeks. It was horrible as they put so much pressure on us. Hannah has weight gain issues and they were awful to us. Sometimes it is better to be left alone!!


 
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Old Jan 1st, 2010, 08:20 AM   #17
AtomicPink
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well, we went to the hospital check up to be told that alexs movement gives no cause for concern so wont be referred to a physio.

this will be re-evaluated every three months!

I was also advised to start weaning, get it up ye, health visitor!


 
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Old Jan 1st, 2010, 09:52 AM   #18
MandaAnda
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Well done, Alex!


 
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Old Jan 1st, 2010, 11:10 AM   #19
Foogirl
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Quote:
Originally Posted by sb22 View Post
well, we went to the hospital check up to be told that alexs movement gives no cause for concern so wont be referred to a physio.

this will be re-evaluated every three months!

I was also advised to start weaning, get it up ye, health visitor!
Excellent news.

And be sure to mention it to your health visitor.


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Old Jan 1st, 2010, 12:16 PM   #20
AtomicPink
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Quote:
Originally Posted by Foogirl View Post
Quote:
Originally Posted by sb22 View Post
well, we went to the hospital check up to be told that alexs movement gives no cause for concern so wont be referred to a physio.

this will be re-evaluated every three months!

I was also advised to start weaning, get it up ye, health visitor!
Excellent news.

And be sure to mention it to your health visitor.
Sure will, it was only on Tuesday I tried to discuss weaning again and she really was adamant I shouldnt even be thinking about weaning her yet!


 
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