Hi all well its been a long 3 weeks let me tell you. On Monday 25th feb i was having a lot of pains so went to delivery suite was kept in they settled over nite. Then on Tuesday morning i didnt feel at all right.. by lunch time i was having pains again id also spiked a couple of temps and they stopped nephdapine as they thought i might have an infection. all bloods came back but just at top end of normal. At 12-1pm i noticed my waters were a yelloy colour told them they doen exam said it was fine, i perosnally didnt think it was it spelt a bit off putting to say the least.
I asked about scbu and was assured their was a cot for Lily-Mae should she arrive. By 3pm my pains were quite uncomftable i had some painkillers and i was leaking huge amiunts of fluid and awaiting a scan. Then at 4pm after my 3rd bath as it was only thing that eased the pain i noticed some green slime on my pad and i told them striaght away, at this point i was really upset and crying as the situation was jsut getting worse and very much like when i had Ella Last April. I waited 3hrs to see a doctor which i was disgusted at not once did someone come and listen in or anything. Eventually my husband and sister in law demanded i be seen. Then my own consultant appeared she checked me over and said Lily-Mae would have to be delivered ASAP.
NEXT..... I was informed that scbu didnt want to take Lily as she was 2 days off 26wks. So i was sat for half an hour while they arranged transefere. At this point i was very distressed as u can only imagine and i had temp. So at 8pm off i went in ambulance to Blackburn as hour away from home. I got their at just gone 9om the done a quick exam and took swabs at this point my temp was 39.8 and i was shivering and frezzing cold i felt so ill. After the exam they exlained i had chromnioamnitis a sever infection of the womb and that Lily-Mae had infact pooed inside me, the took bloods and i was told my little girl was going to born.
I was in theata and the bloods came back and i was 4.5 temp now lay on the table and i was ment to be having a spinal but i was so ill they put me to sleep.
Lily-Mae came at 10.37pm @740g. I was informed after i woke that my bloods had come back in theata and CRP had gone from 15 to 188 in space off 4 hours. Iwas hooked up to all sorts and i had to ahve a classical cut c-section. i was really ill adn kept in delivery overnite. whilst on antibitics.
SO UPTO DATE UPDATE. TUESDAY 18TH MARCH 2008.
Lily has had a very hard 3 weeks. She had bactiral meningistis at brith, which made her speptic. she suffered a grade 4 IVH. Severe SBR levels. weight up adn down. she also has a huge PDA. PDA has been treated and it has closed by over half but not totally she failed extuabtion twice due to the PDA but after treatment she has now been on cpap for 8 days in air. She's been scanned twice aweek for her head as she's developing cysts were the damaged brain tissue is and is at risk of hydrocelpcus. she currently has 7 small cysts on right side of her brain.
Her weight has been up and down at its highest 780g and at its lowest 700g but she is on the rise, she had dropped to 725g adn yesterday she was back up to 761g. She cant be transefered back to blackpool til she's gaining good weight and off cpap for 3 hrs. She has manged time off for 35mins last nite but they wont push her. Her crp did creap back up over weekend and she had LP doen but nothing grew and CRP is normal again now. Thou she's still on antibitics till tomoro or fri they havnt desided yet.
She's in HDU now has been for 5 days. She's on full EBM feeds of 6ml per hour with fortifier. Here's some pics.
Lily-Mae 20mins old
day 2
My brother hand next to Lily-Mae on day 8
day 13
First cuddle at 16days old
Day 19 looking cute
Off cpap on day 20 for 35mins.
Lily-Mae 1st time in a vest on day 20. after going back on cpap.
Lily has had a very hard 3 weeks. She had bactiral meningistis at brith, which made her speptic. she suffered a grade 4 IVH. she also has a huge PDA. PDA has been treated and it has closed by over half but not totally she failed extuabtion twice due to the PDA but after treatment she has now been on cpap for 8 days in air. She's been scanned twice aweek for her head as she's developing cysts were the damaged brain tissue is and is at risk of hydrocelpcus. she currently has 7 small cysts on right side of her brain.
Hiya, she looks really beautiful, in fact just like Charlotte last July, so be positive, she will be home before you know it.
We know what you are going through as charlotte was born with fungal meningitis which infected her brain and she developed two clusters of Csyst's on the right side. She also had a large PDA and they wanted to operate but could not due to the meningitis. She was on strong antibiotics for 8 weeks before she was clear of it and then the PDA just closed of its own accord after 11/12 weeks.
She did develop Hydrocephalus (water on the brain) as a result, after coming home, and was rushed to London for an emergency CT scan as her head had become very swollen but it was not bad enough to warrant a shunt being inserted at that point , so the Doctors decided to monitor her and like over 50% of cases it just cleared itself up and she is now 8 months old and acting very healthy and very normal and is so far meeting all her milestones albeit a little late.
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