Well after a long afternoon we finally got a plan for Lily sorted with hosptail Lily is now coming off cpap for 1 hour twice aday as long as she cope which she did when she came off to day then on monday it will be doubled and then on wedn it'll b increased 2 3hrs and then on thrusday or friday she will be transfered back to blackpool as long as all is well. feel so much better just for ahving a plan. Her Hb has dropped down to 9 so she's having some blood tonite as well which im sure will make her feel even better.
In the NICU Im at they do blood gases every 12 hours to see if they are giving the baby enough or too little oxygen. Do they do that there? Im just curious because in the 2 months Ive been at the NICU , Ive never seen them take the baby off the CPAP a few hours a day
Lily had a blood gas done on saturday which was showed her ph at 7.37 which is best she had so on that ground thats when they introced the weaning of 2x 1hour periods off aday.
Some place's wean off pressure not on time off. Lily hasnt had another gas done since then as she has given them no reason to say that she cant cope if however she started to play up whilst off or in the hour after being off then they would repeat her blood gas. She's only on twice weekly fbc and u and e's. She's been on cpap now for 2 wks, well actaully it was bypap for first 2 days so she's been on normal cpap for 12days now.but she's very stable and they wont bleed her unless they feel she is stuggling.
You only do a gas if u intend to change somehting or if u have recently changed somehting so thier no point in babies like Ella.
Hope that hellps. Ive had 4nicu babies before and allmine have been weaned on time off, first they comeoff for an hour then its doubled then eventually they end up on for 6 off for 6 and then on in days off in night till time on cpap is can be stopped. Lily is'nt being weaned to come off as they expect her to need it for another 3-4weeks she is being weaned mearly to manage transfere to our local hosptial, she has to be able to come off for 2.5hrs. When she has been transfered they wont continue to increase time off as it was just for transefer so it will stay same for a while whilst she grows xx
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