Hi hun, Max sounds like a little fighter, what a great weight too. My son was born at 29 weeks weighing 2lb 5oz. You're guaranteed to have your good days and your bad days so just take each day as it comes. Max definitely sounds like a fighter though, keep it up little man!!

thanks yeah cuddles do seem to settle him, i think that is what has made it difficult for me because was so used to the cuddles!

welcome over huni! max sounds like a real fighter..

i use photobucket to upload my pics onto here x

Hi maxsmummy, I had Freddy at 27 weeks and he weighed 2lb 6ozs. He picked up 3 bad infections and was in intensive care for ages just when he was bein reduced off cpap Bang ill again and apnea and bradys!! He eventually went right down hill and had to be reventilated and had canulas in every limb his little body looked like it had been in a car crash. They shaved his hair off both sides of his head to put lines in his scalp with no luck, then a central line was put in

Eventually he got out of NICU in to Special Care then picked up Yet another infection as kept stopping breathing, back to nicu!! After 9 weeks we got him home after a set back on first week at home again he stopped breathing thank god for our resuss training!!

But I totally understand how you are feeling and what you are going through you just feel like all the other babys are doin really well and you will never get home! It is a horrible horrible rollercoaster and one i wouldnt wish on my worst enemy! But now I look at Freddy and think are you the same baby?? He is 10 mths old and nearly 17lb.


Freddy in nicu

Freddy a couple of months ago

thanks cazH, how old was freddy wen u took him home, max is two months on sunday, it just seems so long and i cant see a light at the end of the tunnel. what makes it worse is people are askin all the time "wen do u think he'll be home" and is he going to be home by christmas!! which i dont know the answer to! he seems so much better last nite which is great, all nice and pink alert and wriggly, he in air as well which is good they sed he is hardly havin any apneas and bradys which is brill!! there starting to build his feed bk up agen as well and his infection levels are bk in normal range which im so pleased about!! hoping they sed they would start cylcing him agen tomorrow twos hours off to start with then buoild him up!!!!!!!!!

Fantastic news...being in Air is fantastic and the fact he is not having any bradys and apneas shows how well he is doing. My little one was in air from week 2 of our journey but she had the most horrific bradys and apneas, one apneas we are waiting to see if it has done any long term damage. I never understood why she was not on oxygen as her breathing problems were quite bad, well in my eyes they were...

I know it is hard but the light is there it is just clouded by our impatience to get them home...I know it is really frustrating but he will be home before you know it and then you will be so busy, NICU and SCBU starts to become a faded memory. For me it is anyway.

Big hugs...he is doing so well...xx

Freddy in nicu

Freddy a couple of months ago[/QUOTE]

CazH, Freddy is gorgeous...then and now...it is so lovely to hear he is doing well...x

He was 9weeks old hun, all of a sudden it seemed to happen. One minute there was no sign of him coming home the next he was back in Special care asking me if i had everything ready. Its the longest waitever to get them home and the resentment of other babies going home is huge coz you just think when is gonna be our time??

Freddys infection levels were so high at one point 300crp at one point the highest!! we thought he was a gonna but never heard any other babies struggling, but looking back there must have been!!

I hated it when people asked me so when is he comin home?? You dont have any idea in there because they never tell you! All sounds good so far for Max so fingers crossed he is on his way outta there!!!!! You just cannot explain the emotions and pain you feel to others that havent been there.

Love to you all sending Max all the strength in the world!!!

he seems to be stronger this time because althought hey sed they would start cycling him tomorrow they have started this evenin because he is really coping well, im so proud of him!! i cant wait for the day theyask me am i ready for him!!!!!! but i dont want to et my hopes up to much that he will be home for xmas!! hes wasnt due until 7th dec so i suppose hes got another month to get well enough!!!!!!!!!!! it is feels horrible to say u resent other babies in he unit but its true!!!!!! ive met another lady in ic who baby is a 26wker and hes three weeks younger than max, his mum says she like lookin at max so she can see what her bbyis going to be like!!!! its so nice to hear stories with a great out come!!!! people dont understand what it ike to be in that situtation unless they have been there and some people can be so insenative with what they say to u or a bout the baby!!!! its so harrd all round!!!!!!! thank u tho, u all have made me feel more confident that he will get home!!!!!! xx

Of course he will get out hun! We always aimed to get Freddy out by his due date and he came out a month before. Some babies just like all the attention and the nurses fuss and wanna stay in there as long as possible, little monkeys!!! So glad he is coping well its amazing how quick they turn around. I couldnt believe it when Freddy was taken off his ventilator for the second time he went on cpap for a day then off completely yet before he was ventilated he only managed 4hrs off cpap. They do amaze us.

You wait till he comes out as people dont believe how old they are they always said Are you sure he is that old???

Come on Max come home to mummy!!!!!!!