Im so pleased to hear he's doing so well. This is my first baby, so I dont really have any advice or anything, just wanted to say Im thinking of you all. I thought from the first photos of him you posted that he looked great for his 'age' and he still does, looks very strong!
I hope you, your DH and family are looking after yourselves as well, because thats just as important
You know how they say in a situation like this that "no news is good news"? Well today we got nothing bad news... probably one of (if not THE) worst day so far. From best as we can tell Noah has an infection (in his blood) possibly from the pick line in his hand. They have him on antibiotics etc but the side affects are it caused major problems with his breathing so he had to have the c-pap put back on earlier today and now tonight they had to incubate him with the breathing tube that he has not had since the first few days he was born. Also they had to stop his feeds and put him back on full IV after being soooo close (.5) to getting him off of it. We will keep you posted but the next 24-48 hours will be critical.. please continue to pray for Noah!
You know how they say in a situation like this that "no news is good news"? Well today we got nothing bad news... probably one of (if not THE) worst day so far. From best as we can tell Noah has an infection (in his blood) possibly from the pick line in his hand. They have him on antibiotics etc but the side affects are it caused major problems with his breathing so he had to have the c-pap put back on earlier today and now tonight they had to incubate him with the breathing tube that he has not had since the first few days.. please continue to pray for Noah!
Hiya, however hard it is try and remain positive, Charlotte caught a very serious infection from her mum's original Candida (Thursh) infection, which caused the premature birth. She was diagnosed with blodd infection at a couple of days old , when only 1 lb 5 oz, and had to go back on the CPAP and did not come off her breathing tube until 38 weeks. They did a spinal and discovered the infection had got to her brain via the spinal fluid and developed into fungal Candida meningitis. They gave her a 1% chance of survival last July but they have very powerful antibiotics these days. She was on them for 8 weeks but pulled through and amazed them all to come home.
It was pretty much the most serious infection a baby could possibly have,
it has left her with two little cysts on her brain but she has grown into a very healthy 10 1/2 lb baby, 7 months old today. Think of her being back on CPAP as a positive not negative thing as it means she can concentrate on fighting the infection.
We don't know whether Charlotte may have any issues as a result, as the Doctor said babies are not expected to and rarely survive the meningitis she had, but we love her to bits and she is acting like a normal healthy baby.
She failed her hearing tests and we are taking her to the Royal Surrey in Guildford to have hearing aids fitted tomorrow but it is no worse than my not being able to see more than 2 feet from my face without contact lenses.
My point is with the arsenal of drugs available these days pretty much any infection can be beaten. Just try and remain positive and keep faith in your little one. It is incredible what tough little fighters they are.
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Glad he's doing so well hon. He'll be putting on weight in no time! hang in there sweetie. Things will get better 
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