NeyNey, Thank you for your comments. Your very right. Though at the times when we are going through the down times it feels like nothing is getting better.
Im sorry I havent updated sooner.... So here's an update
He's doing better. Wearing clothes again and with his brace he weighs 4lbs 2.8 oz...so Im thinking he weighs about 3lbs 12-14oz . The big news is the doctors decided he could take his feedings by mouth. He's taking ALL feedings now by bottle. Im not allowed to breastfeed yet intill he's off the IV and on full feeds, so Im hopeing in a week. He started at 3cc's every three hours last Monday and this Monday he is upto 16cc's every 3 hours. His bottle feeds have made him such a happier baby he loves to eat!! So since he's taking all his feeds by mouth, he doesnt need the OG tube(feeding tube) which was down his nose...so finally after 2 months I can see my baby's face with no tape or anything in his nose or mouth.
Today I went home and decorated his room, before I had been scared to, wasnt sure what was going to happen. Now I know he's going to come home, I just feel it. Im going to ask Brad to post some pics in his photobucket, will post a link when he has it up.