sian

hi sorry about your blood test results. i got told my daughter was going to be disabled when my waters broke at 26 weeks as she was under developed they said she had 1% chance of surviving and if i managed to get to full term she'd be blind deaf and have mental disabilities anyway i ended up being a week over due when i had her and shes absolutley fine her eyes ears and shes certainly not slow! in fact shes extremely forward for her age try not to worry until you know for sure if theres anything wrong and even if your baby is disabled there are worse things that can happen and you will cope just as well as you would if it was 100% healthy. hope everything goes well for you x

Mynxie

I'm sure it will be fine hun

thinking of you (((hugs)))

try to think of it as you're getting a high res scan free and get to see your baby another time before it's born!

Lucy

You're right to try and remain as calm as possible . You poor thing being given news like that over the phone. Rachel has some excellent stats there and just remember that your blood test results have shown that there is a HIGHER risk. Did they give you the 1x number?

GOod luck for your scan

Pumpkin

1 In 19

Lucy

Hi Pumpkin

Try to remember those odds are just a risk factor, did your 12 wk scan show your dates were right?

Not sure if this will help at all but a friend of a friend had low risk bloods, no markers at 20wk scan and had a baby girl with DS. That's why you need to concentrate on it just being a risk factor - her's showed low risk but that doesn't mean NO risk as it turned out.

I hope the 3rd comes quickly, are there things you can do to keep yourself really busy in the meantime?

Thinking of you

bexxie

Hi there hunnie

I had an amnio done at 16 weeks as apparanetly I came up high risk but all was fine you know what and why/? I was actually 2 weeks behind dates and the AFP levels show high earlier on you are,please do not worry things are more likely to be fine this is a marker tests and is not reliable at all. The only way of knowing is through amnio,have you considered this?

Will be back on later baby is crying

bex

Pumpkin

I had a friend who lost her baby due to an amnio, the odds are 1 in 100 of miscarriage. I am not willing to take that chance, if there is something wrong with my son I will just have to deal with it :0(

sian

i'm sure you will be fine if there is something wrong i've always refused these tests as i know there not 100% and if it did show anything wrong i would still have the baby and cope there are lots of things out there to help you when you have a disabled child and i would feel awful if they said it was definatly disabled and i aborted the child as they could be wrong theres no guareentees . really hope your son will be ok

vicky

didn't want to read and run

bexxie

the amnio is 100% reliable there is no getting away from it unless of course human error deemed the result wrong.

The risks of an amnio are like you say 1% and my chances were 1 in 141 and I knew I would have not had a baby with Down Syndrome and would have terminated so I took that risk and the consultant who performed the test had an excellent success rate so I trusted her.

Whatever you decide good luck,but for me I would have ruined my pregnancy worrying so had to take the test also for obvious reasons would not have had the child with Downs. BTW before anyone shoots me I have YEARS of experience of children/adults with DS and I knew I did not want that for my child or myself.

Bex