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Old Dec 26th, 2008, 23:08 PM   #1
scrubgrub
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my nuchal transluceny test - UPDATE- page 5 :(


So I'm gonna document this, and hopefully in the end my results will be good. . . .but who knows.
I went to the doc last Friday. I was 11 weeks 3 days. I got a new ultrasound tech, and new doc than normal because of the Christmas holiday, so some of this is sketchy. They tech showed me that the nuchal fold was measuring at over 4mm. She didn't say 4, nor did the doc, they said over 4mm. So I'm assuming it wasn't quite 5, or even 4.5. She then showed me that there was fluid under some of the other parts of the baby beside the neck. Unfortunately because my baby is a lazy lil bub she wouldn't get into the right position, and the tech said she saw the nasal bone, but the doc said no or uncertain. Basically I'm at risk for having a baby with down syndrome. If there really is no nasal bone, then I'm pretty sure I'm having a special needs. If it was just the angle, and the ultra sound tech was right and there is one, I still have hope.

I'm currently waiting for the blood work (I'm not even going to go into how insensitive the tech was about this test, that's in my journal). It takes 7-10 business days, so the whole Holiday has really delayed results. But, I'm 29, and I miscarried a few months ago, so the chances of something being wrong are high.

My DH says I'm freaking myself out, and that everything is fine, he can just feel it. I just don't know. Some days I think, it's possible that maybe my baby isn't moving enough so it's getting edema. But then again, maybe something is wrong.

I had one of those vivid pregnancy dreams on Christmas eve, that I delivered a baby. It was a little girl with down syndrome, and she was the most precious thing in the world. I nursed her, and held her and everything in my dream. But then she died of kidney failure the next day. My DH says that if something was wrong with the baby, then I should be happy to have those few precious moments with my baby, and be thankful that the baby wouldn't have to suffer through an entire life. Gah I'm driving myself nuts, looking at stats... am I part of the 5% who'll have a healthy baby? Is my baby not downs, and has some other major defect? I hate that there is nothing I can do to make everything ok. At least I can take multi vitamins to make my baby healthy, but all of this, nothing! grrr.


 
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Old Dec 27th, 2008, 12:40 PM   #2
Pux
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I didn't want to read and run.
This is probablly every persons "worst case scenario" But from what I read the NT scan isn't the be-all-end-all test.... they can do others. Just be patient (I know it's hard)
I will keep my fingers crossed for you. Hugz!


 
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Old Dec 27th, 2008, 14:06 PM   #3
scrubgrub
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Thanks. I'm holding to that hope as well. Stupid blood work won't come back till 2009. And I really don't want to do a CVS or amnio... as there is a risk for m/c.


 
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Old Dec 27th, 2008, 14:14 PM   #4
littlemansmum
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Awww honey, i'm sorry you have this hanging over you, i wish i could say 100% all will be ok for you but i just don't know, however my DH told me all through last pregnancy that our baby would be fine, he had a gut feeling and he was right. When i had 20 week scan they couldn't see my sons heart tubes and said that i would need to see a cardiologist and if they couldn't see them he would need surgery while still inside, i had another scan and all was fine, he was just at a bad angle before, but was the worst week of my life waiting to hear when we could go for the next scan. Things worked out for me, and i am hoping they will work out for you, keeping fingers crossed for you xxx


 
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Old Dec 28th, 2008, 12:28 PM   #5
scrubgrub
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Thanks. they did say my lil bub's angle was all off. Here's to hoping!


 
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Old Dec 30th, 2008, 17:35 PM   #6
scrubgrub
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So my doc is back in the office today and called. She really made me feel SOOO much better. First off, she said you can DEFINITELY see a nasal bone. Woo hoo. She said that significantly reduces the risk for something being wrong. She also said, it's odd that on Monday (I went in twice in one week) they couldn't see anything because I was too early, and then on Friday it was 4mm, so it was odd that it jumped so suddenly, so we will have to wait and see. She said I can wait 4-5 weeks to get an amnio or a CVS, the only difference is do I want to know sooner. I think I can wait another month?

Could you guys wait another month to find out if something was wrong or would you want to know asap? My mom says why ruin the pregnancy by finding out at all... but I'm a facts and numbers girl, thus why I love bnb.


 
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Old Dec 31st, 2008, 04:50 AM   #7
Malingo
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so glad they saw the nasal bone, wish you all the best, I dont really have any input about the waiting as I have no idea what I would do, but just wanted to say that I hope things work out well for you and baby xxx


 
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Old Dec 31st, 2008, 04:53 AM   #8
kiki
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Well, you got some good news re the nasal bone, that's great!!!

If this were me, I'm afraid I wouldnt have the amnio. I dont know why, I just wouldnt.

What you need to think about is why you want to know? Is it to prepare yourself or is it to hopefully put your mind at ease or a little of both? What would you do if you were told your baby had Downs? Do you know? Would yo feel any different about your bub?

If you really cant go through your pregnancy without knowing then you must have the amnio,or you will drive yourself crazy.

Like I say though, ask yourself WHY you have to know first and be honest with yourself. Then do what's right for you.

Hope this helps hun. Let us know what you decide, and remember,there aint no right or wrong answer!



xxxx


 
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Old Dec 31st, 2008, 04:56 AM   #9
cerilou
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Hi hun

I really feel for you. It's so awful not knowing what is going on. I had an amnio with my dd as my bloods came back putting me at high risk of having a baby with downs. I am going to have another amnio with this baby too. I know the NT is slightly different but they haven't really given you any answers so I would suggest (as difficult as it is) to try not to wind yourself up about it too much.

How accurate is the NT test?

xxx


 
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Old Dec 31st, 2008, 05:25 AM   #10
FsMummy
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hey scrubgrub, i hope everything is fine. i am the sort of person who would have to know asap too. its good that they saw the nasal bone. im keeping everything x'd for u hun x


 
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