Anyone had an umbilical cord cyst diagnosed on ultrasound?

Junebug_CJ · Nov 9th, 2009, 15:56 PM

I'm just looking to find other women who's babies were found to have umbilical cord cysts. It was identified at my first ultrasound (around 8 weeks) and is associated with a 1/10 risk of chromosomal problems. I was hoping someone could share with me their story, I must not be alone in this... Thanks,
CJ

E&L's mummy · Nov 10th, 2009, 04:29 AM

oh hun. im sorry i havent any advice or experience to share with you. just wanted to send you loads of PMA and hugs. its gonna be tough but you seem to be a really strong individual. wish i had something more reassuring to say to you. xxxxx

Junebug_CJ · Nov 10th, 2009, 09:36 AM

Well, I knew it was rare. Still, I was hoping someone on this forum would have experienced it... My OB told me that he hadn't seen one in nearly 30 years, then I'm the second one in the last 2 months. Apparently his other patient went on to have a CVS, which was normal, and she's in her second trimester now. I just hope I'm that lucky...

CJ

juleslane · Nov 19th, 2009, 17:21 PM

Hi CJ,

i just received a phone call from my doc a few hours ago, telling me that at my 9 wk sonogram, they found a cyst on the baby's umbilical cord. I have been on google ever since, and not liking what I see. No advice for you, but wanted to let you know that you are not alone. Any new updates???

Junebug_CJ · Nov 21st, 2009, 08:19 AM

YES! I did some research myself in the medical literature: appears that the ones identified in first trimester tend to resolve by second trimester and there is NO increased incidence of chromosomal problems in these babies who are born completely normal. I thought this was very reassuring! On the other hand, the risk of chromosomal problems seem to be quite high (I've read 10-50%) in babies with umbilical cord cysts identified in the second and third trimester. So while I thought this was reassuring, I didn't know if the cyst found on my U/S would resolve or not (and I didn't want to just sit back, wait and see), so I had a CVS done on Thursday. Expecting the results back on Tuesday... Did they offer you any testing for baby's chromosomes? I understand what you're going through, PM me if you want to chat some more off thread.

CJ

juleslane · Nov 21st, 2009, 08:42 AM

Thanks CJ for replying!! I couldn't find the PM button(new here), but please please please PM me and fill me on on the CVS if you are comfortable with it. I am so worried

I called to get a second opinion from the new doc I will be seeing. She basically told me what I already knew. To get an opinion from a high risk doc. I have an appt for a Nuchal Translucency scan already on Dec 3rd, and that's the soonest I can be seen with the holiday near. It's killing me to wait! My doc also said, her gut is telling her they were wrong. She said she has never seen this before(doesn't mean anything to me!), and she thinks they over judged this, cause at 9 weeks, the cord is so fat and coiled, and it wasn't a high tech sonogram, so she said they can't see much. I am taking that all in with a grain of salt, but I pray she is right.
I have already decided, if it is still there at 12 weeks 3 days when I go on the 3rd, I will most likely opt for testing. Scary though. Did the CVS hurt at all???

JillianMac · Nov 25th, 2009, 07:05 AM

My doctor just found a cyst on my baby's umbilical cord at 9 weeks. I was wondering if you were given any information about the size, location etc. of the cyst, as I wasn't. Also, were you given the option for the CVS right away? I haven't really had any information given to me and information is hard to come by on the internet. Hope your test went well.

Junebug_CJ · Nov 25th, 2009, 12:05 PM

Quote:

Originally Posted by JillianMac

My doctor just found a cyst on my baby's umbilical cord at 9 weeks. I was wondering if you were given any information about the size, location etc. of the cyst, as I wasn't. Also, were you given the option for the CVS right away? I haven't really had any information given to me and information is hard to come by on the internet. Hope your test went well.

Hi there, was not given info about the size, just that it was on the umbilical cord and the risk for chromosomal problems was 10%. Yes, I was offered the CVS on the spot. Test went well, no cramping or bleeding. Got the results yesterday, no trisomies and a girl!!!

PM me if you want to chat more!!!
CJ

E&L's mummy · Nov 26th, 2009, 02:49 AM

CJ this is seeming more and more comman. i did wonder if it is getting more comman or that scans are advancing so easier to detect iyswim.

so pleased you have all found someone else to talk to about this. xxxxxxxxxxxxxxx

juleslane · Dec 2nd, 2009, 21:14 PM

Hi CJ,

Thanks for sending me a message. Maybe it's because i am new here, but I can't PM for some reason?? Not sure why?? I would love to know how things turned out, if you don't mind sharing?? You can write on my visitor board if you don't want to post here. I have my nuchal scan tomorrow, and will be talking to the specialist about the cyst. I have been worried sick for the past 2 weeks waiting for this appt. I hope thing went well for you!!

Nov 9th, 2009, 15:56 PM	#1
Junebug_CJ Pregnant (Expecting) BnB Addict Join Date: Oct 2009 Location: Toronto, Canada Posts: 5,808	Anyone had an umbilical cord cyst diagnosed on ultrasound? I'm just looking to find other women who's babies were found to have umbilical cord cysts. It was identified at my first ultrasound (around 8 weeks) and is associated with a 1/10 risk of chromosomal problems. I was hoping someone could share with me their story, I must not be alone in this... Thanks, CJ

Status: Offline

Nov 10th, 2009, 04:29 AM	#2
E&L's mummy Mum (Mom) Chat Happy BnB Member Join Date: Aug 2009 Location: Kingdom of Fife UK Posts: 2,476	oh hun. im sorry i havent any advice or experience to share with you. just wanted to send you loads of PMA and hugs. its gonna be tough but you seem to be a really strong individual. wish i had something more reassuring to say to you. xxxxx

Status: Offline

Nov 10th, 2009, 09:36 AM	#3
Junebug_CJ Pregnant (Expecting) BnB Addict Join Date: Oct 2009 Location: Toronto, Canada Posts: 5,808	Well, I knew it was rare. Still, I was hoping someone on this forum would have experienced it... My OB told me that he hadn't seen one in nearly 30 years, then I'm the second one in the last 2 months. Apparently his other patient went on to have a CVS, which was normal, and she's in her second trimester now. I just hope I'm that lucky... CJ

Status: Offline

Nov 19th, 2009, 17:21 PM	#4
juleslane Pregnant (Expecting) New BnB member Join Date: Nov 2009 Posts: 3	Hi CJ, i just received a phone call from my doc a few hours ago, telling me that at my 9 wk sonogram, they found a cyst on the baby's umbilical cord. I have been on google ever since, and not liking what I see. No advice for you, but wanted to let you know that you are not alone. Any new updates???

Status: Offline

Nov 21st, 2009, 08:19 AM	#5
Junebug_CJ Pregnant (Expecting) BnB Addict Join Date: Oct 2009 Location: Toronto, Canada Posts: 5,808	YES! I did some research myself in the medical literature: appears that the ones identified in first trimester tend to resolve by second trimester and there is NO increased incidence of chromosomal problems in these babies who are born completely normal. I thought this was very reassuring! On the other hand, the risk of chromosomal problems seem to be quite high (I've read 10-50%) in babies with umbilical cord cysts identified in the second and third trimester. So while I thought this was reassuring, I didn't know if the cyst found on my U/S would resolve or not (and I didn't want to just sit back, wait and see), so I had a CVS done on Thursday. Expecting the results back on Tuesday... Did they offer you any testing for baby's chromosomes? I understand what you're going through, PM me if you want to chat some more off thread. CJ

Status: Offline

Nov 21st, 2009, 08:42 AM	#6
juleslane Pregnant (Expecting) New BnB member Join Date: Nov 2009 Posts: 3	Thanks CJ for replying!! I couldn't find the PM button(new here), but please please please PM me and fill me on on the CVS if you are comfortable with it. I am so worried I called to get a second opinion from the new doc I will be seeing. She basically told me what I already knew. To get an opinion from a high risk doc. I have an appt for a Nuchal Translucency scan already on Dec 3rd, and that's the soonest I can be seen with the holiday near. It's killing me to wait! My doc also said, her gut is telling her they were wrong. She said she has never seen this before(doesn't mean anything to me!), and she thinks they over judged this, cause at 9 weeks, the cord is so fat and coiled, and it wasn't a high tech sonogram, so she said they can't see much. I am taking that all in with a grain of salt, but I pray she is right. I have already decided, if it is still there at 12 weeks 3 days when I go on the 3rd, I will most likely opt for testing. Scary though. Did the CVS hurt at all???

Status: Offline

Nov 25th, 2009, 07:05 AM	#7
JillianMac Pregnant (Expecting) New BnB member Join Date: Nov 2009 Posts: 1	Just found a cyst My doctor just found a cyst on my baby's umbilical cord at 9 weeks. I was wondering if you were given any information about the size, location etc. of the cyst, as I wasn't. Also, were you given the option for the CVS right away? I haven't really had any information given to me and information is hard to come by on the internet. Hope your test went well.

Status: Offline

Nov 26th, 2009, 02:49 AM	#9
E&L's mummy Mum (Mom) Chat Happy BnB Member Join Date: Aug 2009 Location: Kingdom of Fife UK Posts: 2,476	CJ this is seeming more and more comman. i did wonder if it is getting more comman or that scans are advancing so easier to detect iyswim. so pleased you have all found someone else to talk to about this. xxxxxxxxxxxxxxx

Status: Offline

Dec 2nd, 2009, 21:14 PM	#10
juleslane Pregnant (Expecting) New BnB member Join Date: Nov 2009 Posts: 3	Hi CJ, Thanks for sending me a message. Maybe it's because i am new here, but I can't PM for some reason?? Not sure why?? I would love to know how things turned out, if you don't mind sharing?? You can write on my visitor board if you don't want to post here. I have my nuchal scan tomorrow, and will be talking to the specialist about the cyst. I have been worried sick for the past 2 weeks waiting for this appt. I hope thing went well for you!!

Status: Offline

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Anyone had an umbilical cord cyst diagnosed on ultrasound?

Just found a cyst