Recurrent Miscarriage Thread

Hi Cupcake Queen,

Sorry for your losses, that must be really hard especially after the other treatment and stuff.

There are a lot of other tests (not natural killer cells) that the NHS can do after 3 miscarriages, e.g. blood clotting and hormone tests. Some of us are being treated with progesterone supplements, aspirin and / or heparin, for example. It may be possible to be referred by your GP to a miscarriage specialist.

The NKC stuff is controversial and it'd perhaps be a good idea to read up on it before you take a decision. There is an NHS clinical trial being run by Prof Siobhan Quenby in Liverpool - links to information elsewhere on this thread I think, where they do a uterine biopsy. Though the criteria for the trial are quite tight, and some of us haven't qualified, and you have to have all the "standard" NHS tests done first. Other (all private) places do more general blood tests for the NKCs, which are expensive.

Some doctors believe in it, others don't agree with the science.

There is some information on the Human Fertilisation and Embryology website: http://www.hfea.gov.uk/fertility-tre...mmunology.html

Best of luck with it all.

Cupcake Queen, sounds like they should look into what else may be going on. I am being treated for NKC and that was after a battery of tests. The steroids aren't great, but after 4 losses it seems to have done the trick. It is controversial, but it has worked for a few of us on bnb who was found to have elevated natural killer cells.

nickynoonoo I hope this one sticks to

I had my intake appointment at the RMC clinic yesterday. The doctors and nurses are lovely. Looks like next cycle is going to be interesting!

CD 3 and 21 bloods
Ultrasound
Genetic testing for both Nick and I
HSG

The doctor seemed very hopeful (but realistic and honest), that due to my age, they will figure this mystery out.

Well sperm analysis was fine (for his age she said) bless him, slight sluggish swimmers but the quantity was 60mil so happy and 8% whatever that means

My haemotology appointment was a disaster as the doc couldnt even be bothered to turn up ! All she did was copy the notes off the screen and said she would write to me - I mean WTF. I asked if I got pregnant would I be treated as positive for APS and she said "thats not up to us its up to the professor but I would think so " - was really really angry !

I'm sorry you had such a bad experience at the appointment.

I often wonder why they cant do some of these consults over the phone and save everyone some time, especially if they are going to be like that one! My gyno appointment could have been done on the phone too, it only involved a lot of questions, there was no examinaton! Would have saved me hours of travel time! Pfft to them fluffy, your three eggs will all get fertilized and you can be done will all the garbage!

Has anyone been to Mr Shehata from the Miscarriage Clinic in London? We've decided we are sick of NHS waiting lists, time to get tests back etc that I called Mr Shehata's office this morning - am waiting on them calling me back with more info, costs, timescales etc. We've been to the NHS recurrent miscarriage clinic on 1st Feb - they took a pile of blood from me and one vial from OH. We got a letter last week saying the chromosome testing was fine although i have some abnormal cells due to my again ( I am 36) and the lupus anticoagulant test came back negative. The letter just states they will discuss further on 12th April. Surely they have done more tests than that??

Smidgen, I don't know much about Mr Shehata other than that he is one of the more "radical" doctors in that he tests and treats for "natural killer cells" found in the blood, which is controversial (some doctors / miscarriage specialists don't believe in the science and think that some of the tests exploit women).

I went to St Mary's privately after being disappointed with the tests and manner of the doctors at my local hospital, they are a renowned team, but more "conservative" re. things like the NKCs.

Would recommend Prof Lesley Regan's book on miscarriage which has lots of information about tests. The information on the basic NHS tests is on the Royal College of Obstetricians and Gynaecologist's website.

Some links are below.

http://www.hfea.gov.uk/fertility-tre...mmunology.html

http://www.rcog.org.uk/womens-health...line-means-you

Hello ladies

Just had all my results sheet including the rare anticoagulent test results back form B'ham Women's and everyhting normal.

I am now 6 weeks and hanging in there, although today I don't feel as nauseous so instead of enjoying it I am obviously panicing

My scan is next friday.

Smidgen I was referred to B'ham Womens and I got an appt very quickly. I think London waiting lists are probably longer. Hope you get seen soon

Fluffyblue sorry some people can be so crap. We have to take comfort from thinking we try to be better human being than them

WannaB how you doing??? I am so desperate for this pregnancy to work out for my dear OH, it would make us a lovely complete family.

Nicky fab to see everything is humming along nicley for you hun! Im just plodding along planning my next bfp!