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Old Jul 4th, 2009, 06:21 AM   #91
MrsJD
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Widger the aspirin won't do you any harm, just take it in the morning, well that's what my instructions from the gyne was. Get the folic acid into you, i read about a woman and she was on GMTV, 18 MC's then a full term, reason, she majorily lacked folic acid! My gyne has doubled my dose. B6 comes in different strengths, I've got the 100mg but to be honest wish I'd got the 50mg (go to holland and barratt for these as they are higher in dose) so I'm going to half the one's I have can't handle the hot flushes!

Make sure that womb of yours is like a brand new detached house and just screaming to be lived in

XXXXXXXXXXXXXXXX


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Old Jul 4th, 2009, 15:34 PM   #92
Chilli
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It seems like a whole load of jargon that I don't really understand when you all talk about your tests! I'm sure I'll get there and be asking you all for lots of help as mine come back. I never knew any of these things existed - It's all so complicated!

Widger - I had this situation 2 days after D&C: Just about managed to drag myself out for meeting about DD's preschool. Couldn't drive so I went with a friend who is 2 weeks behind my 1st MC's EDD. We walked in and lady holding new baby squealed with delight at sight of pregancy and usual chat ensued - me? I felt a strong urge to be sick/feint/die/run and hide/ scream. Calmed myself only to spend next hour discussing why nobody else could take on required roles cos all pg!! Urges started again! I hate that not only do we loose our babies and our chances to be happily pg, but that we ahve to deal with this constant barrage of emotions on top of it all!


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Old Jul 4th, 2009, 18:11 PM   #93
hedgewitch
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17 angels but there is hope


17 angels but there is hope

firstly let me say i do not in any way want to hurt or offend anyone nor am i on here to gloat, a few people know my story and they have all said it gave them hope so i wanted to tell you about it. hurting anyone or making your pain worse is not my intention as i have felt the devastation of losing 17 babies one after the other over the last 6 years. for the last 4 years i have been in hospital on my birthday having miscarriages and d&c's and last year was a ten week ectopic so i know your pain only too well.
i have 3 children aged 15, 14 and 11 then i got sterilised due to being in a violent relationship. a few years later i met my husband and decided to try for a reversal a year after we were married. i was assured it had all gone well and we began to try immediately. within a month i was pregnant and we were elated but it was short lived and my babies heart stopped at 8 weeks, we were told it was natures practice run and encouraged to try again and we did. however we systematically lost 16 pregnancies and were never given any answers as to why. they all died between 8 and 12 weeks. all had heartbeats and all normal in development. i was severely depressed and ended up having a breakdown and we nearly divorced due to the situation. i named all of my babies. june/july last year we once again found out i was pregnant. we decided that we would see how things went and not go for scans or anything as i could not stand the devastation of the look they give you when telling you the bad news. everything went fine until 21st august when i was ten weeks, i just didn't feel right, no pain, no bleeding just a feeling. i went A&E that night and they took my blood and told me come back the next morning for a scan. i arrived the next day after suffering extreme pain that morning and was met by the doctor who told me my hormone levels were great and there was nothing to indicate a problem except for my white blood count was up indicating an infection that they would give me antibiotics for when i had had my scan. this gave me some reassurance and i went in for my scan. however the womb was empty. at ten weeks there should have something to see but there wasn't so i had to have my tubes scanned and sure enough there was a ten week foetus in my tube but my tube had basically exploded with the growth and i was immediately rushed to theatre.
when i came round my husband and i were told i had lost so much blood i had nearly died, i had been in theatre for 3 hours and had lost my tube but they couldn't understand why or why i was so ill. i was devastated. as were my husband and children, i looked dead due to the blood loss and being so ill. a few weeks later i was sent to have a dfye put through my existing tube to be told there was extensive damage and my chances were slim. we decided to stop there and move on as my body and mind could not take any more.
2 days before xmas day i got the familiar feeling of being pregnant and did a test xmas day. i was pregnant. i was devastated but happy. i resigned myself to the fact that when we went for the scan on 5th jan they would tell me the familiar sentence of we're sorry but...
they didn't.
i was scanned evry week in the early pregnancy unit till i was ten weeks, in the meantime they did some tests, simple blood tests and found out something that could have saved me the years of heartache and pain of losing my angels, i was diagnosed with graves disease. this is an autoimmune disease that basically caused my antibodies in my body that are designed to protect against colds and things( they fight the infection) to actually attack the foetuses and kill them as they saw them as being an infection. they immediately put me on PTU a medication to help this. the antibodies began to attack my thyroid and i developed thyrotoxicosis instead which means my thyroid is being destroyed instead. i made it past 12 weeks and was scanned evry week. at 26 weeks my meds were reduced and i am now 32 weeks. baby is fine. i will be poorly after the birth but and have been so ill throughout the pregnancy with weight loss and hyperemesis, ketoacidosis and nearly went into a coma at one point but its worth it. i have to have a planned c-section and the baby will more than likely have a few thyroid problems after birth but these will only be mild and wear off by 6 weeks. i have defied the medical experts and i cannot breastfeed due to the meds, i am also high risk throughout and will more than likely have early labour rather than meet my c-section date.
every week was a milestone and i just wanted to let you know there is hope. i will always have graves disease but it can be controlled and it is possible to have a baby even after the losses i had. as i said i am not here to gloat or to hurt or upset anyone but please remember it can happen. my thoughts are with you all and i understand your pain and wish i could help you all through it
i am sorry if i offend anyone, it was not my intention, if you have any questions please contact me
thankyou and blessings to you all
xx


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Old Jul 5th, 2009, 00:57 AM   #94
JASMAK
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Good luck to you Hedgewitch. My best friend has Graves...but no children as of yet (she isn't with anyone). But, I will pass this info onto her.


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Old Jul 5th, 2009, 05:02 AM   #95
Widger
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Thanks for sharing your story Hedgewick. Please let us know how you get on


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Old Jul 6th, 2009, 08:53 AM   #96
jaccib
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Hello girls


Well I am still lurking about here! Had my 5th M/C last weekend and had to endure an 8 week old baby girl,a gorgeous 8 month old boy and 2 pregnant women. At my OHs' sisters wedding!!!!
My 12 year old daughter insisting on photos of her holding the babies......sooo glad that I managed to get through it without bursting into flood of tears!! Only me, OH and his mother knew but it was sooo hard.

Didn't think it would hurt so much. I am at a loss as to what to do now.....maybe it's time to admit defeat??? Or do I put us through it again???
I don't know feeling a bit down again. It's not me at all I'm usually so optomistic. OH is worried that We are putting my health at risk and all he wants is me back!!!

I sooooo want another baby it's really getting to me now. I am sure I can cope I am strong enough but OH isn't convinced. What can I say to him to make him understand? He has been soooo understanding and would so love a baby too......but he doesn't want this to keep happening....there are no guarantees are there??!! IF ONLY!!!

Jacci.xx


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Old Jul 6th, 2009, 09:16 AM   #97
Peach Blossom
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Quote:
Originally Posted by hedgewitch View Post
17 angels but there is hope

firstly let me say i do not in any way want to hurt or offend anyone nor am i on here to gloat, a few people know my story and they have all said it gave them hope so i wanted to tell you about it. hurting anyone or making your pain worse is not my intention as i have felt the devastation of losing 17 babies one after the other over the last 6 years. for the last 4 years i have been in hospital on my birthday having miscarriages and d&c's and last year was a ten week ectopic so i know your pain only too well.
i have 3 children aged 15, 14 and 11 then i got sterilised due to being in a violent relationship. a few years later i met my husband and decided to try for a reversal a year after we were married. i was assured it had all gone well and we began to try immediately. within a month i was pregnant and we were elated but it was short lived and my babies heart stopped at 8 weeks, we were told it was natures practice run and encouraged to try again and we did. however we systematically lost 16 pregnancies and were never given any answers as to why. they all died between 8 and 12 weeks. all had heartbeats and all normal in development. i was severely depressed and ended up having a breakdown and we nearly divorced due to the situation. i named all of my babies. june/july last year we once again found out i was pregnant. we decided that we would see how things went and not go for scans or anything as i could not stand the devastation of the look they give you when telling you the bad news. everything went fine until 21st august when i was ten weeks, i just didn't feel right, no pain, no bleeding just a feeling. i went A&E that night and they took my blood and told me come back the next morning for a scan. i arrived the next day after suffering extreme pain that morning and was met by the doctor who told me my hormone levels were great and there was nothing to indicate a problem except for my white blood count was up indicating an infection that they would give me antibiotics for when i had had my scan. this gave me some reassurance and i went in for my scan. however the womb was empty. at ten weeks there should have something to see but there wasn't so i had to have my tubes scanned and sure enough there was a ten week foetus in my tube but my tube had basically exploded with the growth and i was immediately rushed to theatre.
when i came round my husband and i were told i had lost so much blood i had nearly died, i had been in theatre for 3 hours and had lost my tube but they couldn't understand why or why i was so ill. i was devastated. as were my husband and children, i looked dead due to the blood loss and being so ill. a few weeks later i was sent to have a dfye put through my existing tube to be told there was extensive damage and my chances were slim. we decided to stop there and move on as my body and mind could not take any more.
2 days before xmas day i got the familiar feeling of being pregnant and did a test xmas day. i was pregnant. i was devastated but happy. i resigned myself to the fact that when we went for the scan on 5th jan they would tell me the familiar sentence of we're sorry but...
they didn't.
i was scanned evry week in the early pregnancy unit till i was ten weeks, in the meantime they did some tests, simple blood tests and found out something that could have saved me the years of heartache and pain of losing my angels, i was diagnosed with graves disease. this is an autoimmune disease that basically caused my antibodies in my body that are designed to protect against colds and things( they fight the infection) to actually attack the foetuses and kill them as they saw them as being an infection. they immediately put me on PTU a medication to help this. the antibodies began to attack my thyroid and i developed thyrotoxicosis instead which means my thyroid is being destroyed instead. i made it past 12 weeks and was scanned evry week. at 26 weeks my meds were reduced and i am now 32 weeks. baby is fine. i will be poorly after the birth but and have been so ill throughout the pregnancy with weight loss and hyperemesis, ketoacidosis and nearly went into a coma at one point but its worth it. i have to have a planned c-section and the baby will more than likely have a few thyroid problems after birth but these will only be mild and wear off by 6 weeks. i have defied the medical experts and i cannot breastfeed due to the meds, i am also high risk throughout and will more than likely have early labour rather than meet my c-section date.
every week was a milestone and i just wanted to let you know there is hope. i will always have graves disease but it can be controlled and it is possible to have a baby even after the losses i had. as i said i am not here to gloat or to hurt or upset anyone but please remember it can happen. my thoughts are with you all and i understand your pain and wish i could help you all through it
i am sorry if i offend anyone, it was not my intention, if you have any questions please contact me
thankyou and blessings to you all
xx
Hi Hedgewitch. I am so sorry for all your losses. I too have Graves' disease, but it has been undercontrol for almost 6 years now. I am on PTU, but last year did have some difficulties relapsing then going hypo then getting back to normal. I have mc'd twice this year and have PCO as well as Graves'. I was interetsed to see what you wrote about the antibodies attacking the feotuses... I wonder if maybe my levels aren't as controlled as I though... Have my next endo appt on 28th July.

I wish you all the best for the remainder of your pregnancy and hope you're not too ill afterwards.


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Old Jul 6th, 2009, 11:19 AM   #98
hedgewitch
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Peach Blossom my levels were all over the place. they are at a level at the moment where they have taken me off the PTU last week to allow it to be out of the babies system when she's born but i am really worried about this but i know its for the sake of the baby so its a case of fingers crossed that i'll be ok. nervous time. i just want to let people know that it is not something that is routinely tested for and in my case it was why i lost all my babies, i am sorry for your losses and hope that you can get sorted to a point that you are able to carry safely. all the best for the future, xx


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Old Jul 6th, 2009, 16:34 PM   #99
babytots
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hi ladies hope everyones well! i noticed that i didnt have the progesterone test done so going to ask when im at my next appointment and also ask about having a scan done as i read they also do this to to check everythings ok with the womb etc.

thanks for sharing your story hedgewitch. for those who have graves disease is there any symptoms to it? want to keep all eyes and ears open for anything that can cause mc so can go through every avenue with my consultant.

jasmak welcome to this thread though am so sorry to see you here hunni i wish it wasnt so.

jacci i feel like you some days where i think whats the point in trying again am fed up fo feelnig sad not only for losing my babies but also because i know i cant ttc yet it consumes my thoughts even more so when i read other peoples good news regarding pregnancies/scans/births etc it seems everyday one one of my friends be it online or in reallife have some kind of annoucement.

i think my df may feel like yours too that he doesnt think i could go through this again emotionally. i had a terrible breakdown after our 2nd loss but with jessica i tried to be strong and not get that bad and thankfully i didnt.

then i get some days where i think i WILL get pregnant and i WILL get a healthy baby and i know i just cant give up.

one day we will all have our babies and they will be so so loved by their mummy and daddys (and siblings too).x


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Old Jul 6th, 2009, 16:41 PM   #100
hedgewitch
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BABYTOTS i was not aware i had the condition at all until the tests came back. i began with symptoms of extreme muscle wastage and fatigue, i was very healthy size 12 attending university and raising a family the usual busy lifestyle then i suddenly got ill and changed from a outgoing 30 something to a 90 year old trapped in a young body. no one could tell me why i had changed so badly, i developed insomnia, fatigue, siezures, rapid heart rate without exercise, extreme weight loss even though i was eating all the time due to the increased appetite the nervousness was the worst. i was a shell of who i was. i began having panic attacks and became house bound.
severe depression and emotional problems then presented themselves but i put it down to the losses. there are many symptoms that i had that were diagnosed as being seperate conditions as nobody had put them together collectively and worked it out.


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