newbie stressed with high risk result ds

baileykenz · Mar 13th, 2010, 05:06 AM

hi new to site and i will start by saying i have a 8yr son and 2yr daughter and they are fab.. i am 17weeks on monday and i am high risk patient due to diabetes, saw my consultant weds and she said i am high risk for downs as my bloods came back 1:147..i am beside myself as previous pregnancies were way up in thousands and been offered amnio but scared to death of loosing baby.. i am sending myself around the twist and cant stop crying as i feel i need to know but partner keeps saying everything fine..please help?
emma

Hoolie · Mar 13th, 2010, 11:40 AM

The threshold of being classed as high risk is 1:150 I believe. You're so near the top end of it.

If you equate this into a percentage chance of having a baby with Downs, it'd be 0.7%...less than 1%. That's 99.3% chance of having a baby without Downs.

My results came back 1:15. I went for an amnio and the results came back as negative for any major chromosonal abnormalities.

Alex

baileykenz · Mar 14th, 2010, 04:36 AM

thanks for that alex when you break it down like that it looks a great amount better..i dont think i am going for amnio as scares me to death..but will have a detailed scan at 20weeks to check for any vast defects..lovely to hear your results came back normal
emma

chatterbox93 · Mar 14th, 2010, 04:40 AM

mum was 48 when she had me, she had 1:10 chance of me being downs. she didnt do the amnio and i am perfectly healthy and have my own little boy now =]

MommyMichele · Mar 14th, 2010, 06:31 AM

Do you know how often that test is wrong? They don't even bother with that blood test at my clinic, they can get much better results with ultrasound now.

bump_wanted · Mar 16th, 2010, 07:04 AM

we are 1:92 for downs at 25 it was a total shock for me but we refused the amino having a DS baby isnt ideal (if you understand what i mean no one would wish this on there baby) but having no baby is totally unthinkable for me id make the same decision today if i had to...theres no a day thats went by since i got the results at 16 weeks ive not thought about it i worry terribly but i will love him regardless and we will cope

if im lucky enough to go on and hav a 2nd child i wont take the blood tests i wish my mw had spoken to me about these tests before (maybe thats passing the buck but i was only told what the blood was for after it was taken...probably is my place to ask but hindsight is a great thing) xx

baileykenz · Mar 16th, 2010, 13:51 PM

hi bump wanted
firstly can i say i respect you immensly and i only found out a week ago and have worried myself sick..how did your detailed scan go? i am going to ask tommorow at hospital if i can have early detailed scan..
emma

baileykenz · Mar 16th, 2010, 13:53 PM

thanks telling me about your mums story

bump_wanted · Mar 17th, 2010, 07:16 AM

hi emma! hope your feeling a little better today each day that goes by you learn to deal with it a little better or maybe you just get better at pushing it to the back of your mind!

when we had our detailed scan the scanner person said he looked perfect so that put my mind at rest. not sure if it will be the same where you live but i asked if i could have my detailed scan brought forward when we 1st found out but they said the baby had to be 20 weeks for the soft markings of downs to be visbale but dont let that stop you asking because i would have been annoyed with myself if i didnt at least try.

let me know how you get on today please im thinking of you xx

louise85 · Mar 17th, 2010, 16:18 PM

Hi, my risk is 1:270 (due to nuchal of 2.8mm)

I declined amnio and have had a 16 week detailed scan, 20 week scan, and 20 week detailed heart scan, everything looks fine

Obviously the final choice is upto you, but the odds are still on your side
xxx

Mar 13th, 2010, 05:06 AM	#1
baileykenz Mum (Mom) Chat Happy BnB Member Join Date: Mar 2010 Location: wales Posts: 1,070	newbie stressed with high risk result ds hi new to site and i will start by saying i have a 8yr son and 2yr daughter and they are fab.. i am 17weeks on monday and i am high risk patient due to diabetes, saw my consultant weds and she said i am high risk for downs as my bloods came back 1:147..i am beside myself as previous pregnancies were way up in thousands and been offered amnio but scared to death of loosing baby.. i am sending myself around the twist and cant stop crying as i feel i need to know but partner keeps saying everything fine..please help? emma

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Mar 13th, 2010, 11:40 AM	#2
Hoolie Pregnant (Expecting) Active BnB Member Join Date: Jul 2009 Posts: 625	The threshold of being classed as high risk is 1:150 I believe. You're so near the top end of it. If you equate this into a percentage chance of having a baby with Downs, it'd be 0.7%...less than 1%. That's 99.3% chance of having a baby without Downs. My results came back 1:15. I went for an amnio and the results came back as negative for any major chromosonal abnormalities. Alex

Status: Offline

Mar 14th, 2010, 04:36 AM	#3
baileykenz Mum (Mom) Chat Happy BnB Member Join Date: Mar 2010 Location: wales Posts: 1,070	thanks for that alex when you break it down like that it looks a great amount better..i dont think i am going for amnio as scares me to death..but will have a detailed scan at 20weeks to check for any vast defects..lovely to hear your results came back normal emma

Status: Offline

Mar 14th, 2010, 04:40 AM	#4
chatterbox93 Pregnant (Expecting) Active BnB Member Join Date: Mar 2010 Location: Adelaide, S. Australia Posts: 114	mum was 48 when she had me, she had 1:10 chance of me being downs. she didnt do the amnio and i am perfectly healthy and have my own little boy now =]

Status: Offline

Mar 14th, 2010, 06:31 AM	#5
MommyMichele AutoSignup (SAAB) BnB Addict Join Date: Sep 2008 Location: Iowa Posts: 2,526	Do you know how often that test is wrong? They don't even bother with that blood test at my clinic, they can get much better results with ultrasound now.

Status: Offline

Mar 16th, 2010, 07:04 AM	#6
bump_wanted Mum (Mom) BnB Addict Join Date: Mar 2009 Posts: 4,729	we are 1:92 for downs at 25 it was a total shock for me but we refused the amino having a DS baby isnt ideal (if you understand what i mean no one would wish this on there baby) but having no baby is totally unthinkable for me id make the same decision today if i had to...theres no a day thats went by since i got the results at 16 weeks ive not thought about it i worry terribly but i will love him regardless and we will cope if im lucky enough to go on and hav a 2nd child i wont take the blood tests i wish my mw had spoken to me about these tests before (maybe thats passing the buck but i was only told what the blood was for after it was taken...probably is my place to ask but hindsight is a great thing) xx

Status: Offline

Mar 16th, 2010, 13:51 PM	#7
baileykenz Mum (Mom) Chat Happy BnB Member Join Date: Mar 2010 Location: wales Posts: 1,070	hi bump wanted firstly can i say i respect you immensly and i only found out a week ago and have worried myself sick..how did your detailed scan go? i am going to ask tommorow at hospital if i can have early detailed scan.. emma

Status: Offline

Mar 16th, 2010, 13:53 PM	#8
baileykenz Mum (Mom) Chat Happy BnB Member Join Date: Mar 2010 Location: wales Posts: 1,070	thanks telling me about your mums story

Status: Offline

Mar 17th, 2010, 07:16 AM	#9
bump_wanted Mum (Mom) BnB Addict Join Date: Mar 2009 Posts: 4,729	hi emma! hope your feeling a little better today each day that goes by you learn to deal with it a little better or maybe you just get better at pushing it to the back of your mind! when we had our detailed scan the scanner person said he looked perfect so that put my mind at rest. not sure if it will be the same where you live but i asked if i could have my detailed scan brought forward when we 1st found out but they said the baby had to be 20 weeks for the soft markings of downs to be visbale but dont let that stop you asking because i would have been annoyed with myself if i didnt at least try. let me know how you get on today please im thinking of you xx

Status: Offline

Mar 17th, 2010, 16:18 PM	#10
louise85 Pregnant (Expecting) Chat Happy BnB Member Join Date: Oct 2009 Location: Birmingham Posts: 1,377	Hi, my risk is 1:270 (due to nuchal of 2.8mm) I declined amnio and have had a 16 week detailed scan, 20 week scan, and 20 week detailed heart scan, everything looks fine Obviously the final choice is upto you, but the odds are still on your side xxx

Status: Offline

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