Hydrocephalus - Updated with: Our Birth Story on Page 14

Sammy2009 · Dec 19th, 2009, 05:21 AM

We went for our 20+4 scan yesterday and all was fine except they said that the baby had Hydrocephalus, severely. I have already had all the tests for Downs, spina bifida, an amnio and tests for every other problem possible and bloods and all were fine. At 16 weeks the baby's brain was developing fine and nothing showed any signs of any problems. The sonographer said that the baby's brain tissue has been compressed with a lot of water and its not looking good. We have asked for a second opinion at another hospital but we already know the chances dont look good and have been told they will probably have to stop the pregnancy. Does this mean I will now have to gove birth to the baby on Monday? We are mortified... I dont know any answers or what to expect. I feel dead inside. I only know this is water on the brain... Is there nothing they can do?

EternalRose · Dec 19th, 2009, 06:48 AM

Hi ya hun,

I am so sorry to hear your news, all I know as well is that hydrocephalus is fluid on the brain. When is the other hospital going to give you the second opinion? Your in my thoughts hun, sorry I couldnt be more help x

EternalRose xx

maybebaby3 · Dec 19th, 2009, 07:25 AM

i have seen a program where the baby had hydrocephalus and they drained the fluid from the brain bit by bit. i dont know what the long term effects on the baby were tho. sorry not 2 be more help. hopefully there is hope 4 your LO

Sammy2009 · Dec 19th, 2009, 08:16 AM

Our second opinion is on Monday though i dont know what time yet. The team are the most professional in Holland so we know whatever they say will be final and accurate. They have just performed an operation a few months ago on a baby in the womb and now the baby is born and normal but what the long term effects are, they cannot predict. This is what i am worried about.... its a lottery. This of course depends on how bad it is... we wont know the prognosis until Monday. It may swing either way. All i know is the sonographer had problems finding any brain tissue so i guess ours is worst case as they have to have some healthy brain tissue to work with and i dont think she has any or much.

MrsSixx · Dec 19th, 2009, 08:26 AM

I don't have any useful help/advice (sorry) but wanted to give you

and say I hope you get some good news on Monday.

xx

cupcake23 · Dec 19th, 2009, 08:31 AM

You poor thing...not much I can say but Im thinking of you.

hannahR · Dec 19th, 2009, 08:48 AM

So sorry lovey. xxx

amazed · Dec 19th, 2009, 09:12 AM

I have no advice hun... but i just wanted to tell you that you and your baby our in my thoughts xxxx

AtomicPink · Dec 19th, 2009, 09:55 AM

Sammy

My Alex had the same when she was born, as did a lot of the premature babies with Alex. Some of them had shunts put in to drain the fluid. Alexs fluid drained away eventually itself.

In all those cases we just have to wait and see what the future holds for us, as it can have an effect, but not always.

In the meantime she is a normal baby doing normal baby things. I really hope that the second opinion gives you better options and I am thinking of you xxxx

BBonBoard · Dec 20th, 2009, 23:06 PM

so sorry

Dec 19th, 2009, 05:21 AM	#1
Sammy2009 Trying to conceive (TTC) Chat Happy BnB Member Join Date: Jul 2009 Location: Holland (native English) Posts: 1,904	Hydrocephalus - Updated with: Our Birth Story on Page 14 We went for our 20+4 scan yesterday and all was fine except they said that the baby had Hydrocephalus, severely. I have already had all the tests for Downs, spina bifida, an amnio and tests for every other problem possible and bloods and all were fine. At 16 weeks the baby's brain was developing fine and nothing showed any signs of any problems. The sonographer said that the baby's brain tissue has been compressed with a lot of water and its not looking good. We have asked for a second opinion at another hospital but we already know the chances dont look good and have been told they will probably have to stop the pregnancy. Does this mean I will now have to gove birth to the baby on Monday? We are mortified... I dont know any answers or what to expect. I feel dead inside. I only know this is water on the brain... Is there nothing they can do?

Status: Offline

Dec 19th, 2009, 06:48 AM	#2
EternalRose Mum (Mom) BnB Addict Join Date: Jun 2009 Posts: 5,739	Hi ya hun, I am so sorry to hear your news, all I know as well is that hydrocephalus is fluid on the brain. When is the other hospital going to give you the second opinion? Your in my thoughts hun, sorry I couldnt be more help x EternalRose xx

Status: Offline

Dec 19th, 2009, 07:25 AM	#3
maybebaby3 Mum (Mom) BnB Addict Join Date: Jul 2009 Location: Gibraltar Posts: 6,284	i have seen a program where the baby had hydrocephalus and they drained the fluid from the brain bit by bit. i dont know what the long term effects on the baby were tho. sorry not 2 be more help. hopefully there is hope 4 your LO

Status: Online

Dec 19th, 2009, 08:16 AM	#4
Sammy2009 Trying to conceive (TTC) Chat Happy BnB Member Join Date: Jul 2009 Location: Holland (native English) Posts: 1,904	Our second opinion is on Monday though i dont know what time yet. The team are the most professional in Holland so we know whatever they say will be final and accurate. They have just performed an operation a few months ago on a baby in the womb and now the baby is born and normal but what the long term effects are, they cannot predict. This is what i am worried about.... its a lottery. This of course depends on how bad it is... we wont know the prognosis until Monday. It may swing either way. All i know is the sonographer had problems finding any brain tissue so i guess ours is worst case as they have to have some healthy brain tissue to work with and i dont think she has any or much.

Status: Offline

Dec 19th, 2009, 08:26 AM	#5
MrsSixx Mum (Mom) Active BnB Member Join Date: Apr 2009 Location: Cheltenham Posts: 308	I don't have any useful help/advice (sorry) but wanted to give you and say I hope you get some good news on Monday. xx

Status: Offline

Dec 19th, 2009, 08:31 AM	#6
cupcake23 Mum (Mom) Active BnB Member Join Date: Oct 2009 Location: London Posts: 781	You poor thing...not much I can say but Im thinking of you.

Status: Offline

Dec 19th, 2009, 08:48 AM	#7
hannahR Mum (Mom) Chat Happy BnB Member Join Date: Oct 2009 Location: loughborough, uk Posts: 2,187	So sorry lovey. xxx

Status: Offline

Dec 19th, 2009, 09:12 AM	#8
amazed Mum (Mom) BnB Addict Join Date: Jul 2009 Location: Warwickshire,uk Posts: 5,382	I have no advice hun... but i just wanted to tell you that you and your baby our in my thoughts xxxx

Status: Offline

Dec 19th, 2009, 09:55 AM	#9
AtomicPink Mum (Mom) BnB Elite Join Date: Jan 2009 Location: Scotland Posts: 19,126	Sammy My Alex had the same when she was born, as did a lot of the premature babies with Alex. Some of them had shunts put in to drain the fluid. Alexs fluid drained away eventually itself. In all those cases we just have to wait and see what the future holds for us, as it can have an effect, but not always. In the meantime she is a normal baby doing normal baby things. I really hope that the second opinion gives you better options and I am thinking of you xxxx

Status: Offline

Dec 20th, 2009, 23:06 PM	#10
BBonBoard Other BnB Addict Join Date: Jun 2009 Location: Central California Posts: 2,981	so sorry

Status: Offline

Similar Threads
Our Birth Story - Posted	Pregnancy - Third Trimester
Clothes Size 12 and 14 updated 8pm and more photos on page 2	Buy, Swap & Sell

User Name		Remember Me?
Password