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Old Oct 17th, 2009, 23:07 PM   #31
RubyRainbows
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Quote:
Originally Posted by blackthickpea View Post
well ty to all the ladies who have answered but i must confess that I am so worried and as the time is drawing closer i am even more worried i pray all the time but i worry tons regardless. as is now I am even scared to go in labour, However i am so thanksful for this site cause i am reassured by most of the women on here i still wish that other women who have gotten positive results for ds but emeded up having healrhyt children should share their experience
Try not to worry too much, worry & stress are not good for the baby! Keep praying and thinking positively! I think it sounds very reassuring that the doc feels your positive screen is the result of the wrong gestational calculation. From what the other girls wrote, it sounds like that could def effect the test. I think alot of factors must effect it since there is such a high amount of false positives!! I worried NON-STOP during my pregnancy... and i really, truly wish i had just relaxed & enjoyed it more! I know it's easier said than done! Good luck & please keep us posted on how everything is going!


 
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Old Oct 18th, 2009, 04:37 AM   #32
sw2129
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I didnt have the blood test but on my 20 week scan they found some signs of DS, we refused amnio test because of the risk of MC. We were told we had 1-100 chance he may have it but that dont bother us we have great support around us and will love him just the same. TBH i havent even giving it a second thought, i thought i would be down all the time but have coped really well!! Hope that you will be ok xxxx


 
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Old Oct 18th, 2009, 04:49 AM   #33
cleopatra
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Hi hun, I was in the same situation with 1:214 and decided not to do the amnio as the risk of a down syndrome baby was equal to the risk of miscarriage. I now had my scan at 20 weeks and was told by the specialist that everything looks in order and this scan is generally 97% accurate which was good enough for me.

So don't worry, if they haven't pointed out anything to you, your baby should be in perfect health. Enjoy the remainder of your pregancy and don't worry :-)


 
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Old Oct 18th, 2009, 15:57 PM   #34
NathansMommy
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I was not supposed to be a high risk for defects because we lost our first one to Trisomy 13.. With my 2nd, he was a 1 in 4 chance of having downs and i was given a 99% chance that this would not happen again from genetics dept.. but they thought again we were going to get through it. I opted for a CVS at 13 wks which didnt get any results and did an amnio at 16 wks for peace of mind. I know what it is like to bury my 3 wk old son and I will be doing the testing again this time around. By the way, my son did turn out alright even though he had the markers for downs.. ie no nasal bone and such. He just had a small nose.. LOL.. Take care and talk to your doctor


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Old Oct 23rd, 2009, 21:06 PM   #35
sunshine007
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Im so torn about genetic testing. i just turned 39 and its my first pregnancy. It seems there are alot of false positives. I dont know what is better


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Old Oct 23rd, 2009, 21:38 PM   #36
cillybean83
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i was told that my first born had DS...we didn't have the ultrasound to confirm but they said due to measurements and such they were almost convinced he had it...he was born 100% fine...i sincerely question how accurate ultrasounds are and like you, the risk of an amnio wasn't worth it to me. DS or not, he was my son and I loved him no matter what he came into the world with or without. I'm sure your fine hun!


 
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Old Oct 27th, 2009, 12:38 PM   #37
Mazmos
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Hi Girls,
I am in the same situation. Based on my age alone (37) they gave me a 1:220 chance of downs, but when they checked that against my bloods, my risk increased to 1:120 chance. My bloods were:
AFP 0.59
HCG 1.14
Estirol 0.79
The midwife said the 'perfect' figure for all the above (calculated by a computer programme) should be 1 for each of the hormones. As my AFP and Estirol are lower than 1 and my HCG is higher, this increased my risk.
I have been so worried, but have started trying to think on the positive side, that my risk is less than 1%, and the other 99.2% is on my side, but I still have it in the back of my head that something could go wrong
We have also refused the amnio, as don't think we would be able to terminate now (18 + 3) but have been told our 20 week scan will look for soft markers thay may indicate Downs.
There are a lot of maybe's from the midwives so just hope that all is well with my little Bubs
Maz 18+3 xxx


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Old Oct 28th, 2009, 13:32 PM   #38
SuJo
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Hi everyone. Just wanted to share my experience on this topic. I'm 30 and found out on Saturday that the results of my double test show we have a 1:239 chance of the baby having Downs so were booked in to the hospital yesterday to meet the consultant. We had a scan on which everything looked normal but the doctor made sure we understood that the only way to know for sure is to have the amnio so although we were pleased the scan looked fine she said it doesn't change our statistic. Anyway, the staff were lovely and left us alone to make our decision, we were both really emotional but decided not to risk the amnio and to be honest as soon as we decided that I felt like a huge weight had been lifted. We were so happy and excited until all this happened and now we just want to get back to that feeling and enjoy the rest of the pregnancy, hoping for the best but knowing if the baby does have Downs we'll cope and love our little honeymoon baby just the same. The nice news is that we were desperate the find out the sex and now know it's a boy :-) x


 
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Old Oct 29th, 2009, 06:11 AM   #39
Szaffi
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SoJo, our situation is almost the same. I've worried a lot - in first tri about MC, and in second tri about DS, and I've felt that it made it near impossible to enjoy the pregnancy. I managed to calm down in third tri, when I realised that now we're definitely doing to go ahead, and deal with whatever happens - we should find out soon enough.

I hope you'll manage to get back to enjoying your pregnancy soon :-)


 
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Old Oct 30th, 2009, 23:18 PM   #40
blackthickpea
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it's amazing how many other women are in the same boat as each other thank God for these forums and ladies let,s just pray for each other


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