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The Boy Whos Skin Fell Off (Jonny Kennedy)

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Old Aug 19th, 2008, 02:57 AM   #1
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The Boy Whos Skin Fell Off (Jonny Kennedy)


Hey guys. I'm not sure how many of you ever watched this documentry when it was first on channel 4 in March 2004. I was lucky enough to see it, and wow, although it's hard to watch it is such an amazing story of one gentlemans illness and his fight with a lifelong illness and his last months on this earth. After watching this Documentry I did some fundraising for his charity locally and have done a few times since, not much but something. I just wanted to make people aware of this story. In all the documentry is just over 50 minutes long but it's well worth 50 minutes out of anyone life to watch it. I found it again on youtube after hearing Jonnys song ( Queen - Don't stop me now ) and I just wanted to post it here to give you all the same chance I had at watching such and amazing man. I'll post the vids below but you can find them on you tube x This story touched me and made me see things in a completely different way in life. I really hope even one of you is as touched by this as I was x

I just want to warn you also, this is very difficult to watch in some parts and some people may find it hard to watch as it is to do with Jonnys last wishes and his passing, anyone who finds this subject difficult may want to avoid watching. x I love you all x





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Old Aug 19th, 2008, 04:17 AM   #2
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I have seen this persons story, me and rob used to work in the charity shop before we worked for asda
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Old Aug 19th, 2008, 05:41 AM   #3
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Wow....I wasn't going to watch all of it but once I started I couldn't stop!
It was amazing...I went from smiling to crying all in the one breath!

Thanks for sharing
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Old Aug 19th, 2008, 07:19 AM   #4
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I remember watching it on tv. I cried so much it was such an amazing story.
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Old Aug 19th, 2008, 09:06 AM   #5
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its a beautiful story. i remember seeing it before.
a family friend suffers from this illness Epidermolysis Bullosa (EB) so this documentary meant so much to me and i have done fundrasing for the charity in the past. x
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Old Aug 19th, 2008, 09:07 AM   #6
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Yeah, I remember seeing this... really touching...
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Old Aug 19th, 2008, 10:54 AM   #7
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I used to work for the charity his home carers worked for. A few people were very close to him. What a brave man.

xxx
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Old Aug 19th, 2008, 12:19 PM   #8
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I have seen this documentary on tv, it definitely made me cry. xo
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Old Aug 19th, 2008, 15:56 PM   #9
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Thank you for the responces guys, just it touched me so much and I wanted to share that with you x
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Old Aug 19th, 2008, 18:22 PM   #10
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I remember watching that, he was an amazing man, so full of charisma.
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