Reflex Sympathetic Dystrophy

Mynxie · Oct 22nd, 2007, 18:42 PM

Some of you already know that I have Reflex Sympathetic Dystrophy (RSD), I'm starting a campaign to raise awareness of RSD and the first step in it is the myspace page - www.myspace.com/fightingrsd

What I'm hoping is that through my campaign and other peoples campaigns, that fewer people will end up like me, because more people will be diagnosed faster and treated within the critical 3-6 months.

Please, click on the RSD picture, here or in my signature, and if you have myspace please add me and spread the word by asking your friends to add me too.

RSD can happen to anyone, my limbs don't work properly now cause I slipped on a wet floor and sprained my knee and ankle....that's all it took! It never got better!

A few women have got RSD because they had SPD while they were pregnant....their SPD never got better...

Iwantone!!! · Oct 22nd, 2007, 18:44 PM

aawww hunni so anyone can have it and it can take on accident to get RDS am i reading that rght

Mynxie · Oct 22nd, 2007, 18:53 PM

yep.

It's most common after an injury...a minor one at that.

There's 2 kinds, one where a nerve was severed, and the other where it wasn't - mine's the latter.

On rarer occasions, someone will just wake up one morning and it'll be there, the intense pain, the deep burning, that part just not doing as it's told, cold to touch, silly colours, swelling (look at the pics on the site - they're my feet during a flare up) and so forth.

Mynxie · Oct 23rd, 2007, 15:47 PM

Someone suggested that I do a blog as part of my campaign...was wondering what you ladies thought?

Iwantone!!! · Oct 23rd, 2007, 16:33 PM

go girl xxx

Mynxie · Oct 23rd, 2007, 18:05 PM

I've done another site tonight....not really what I wanted if I'm honest but I suppose it's another bit of the web isnt it....

http://www.fightingrsd-crps.zoomshare.com

Oct 22nd, 2007, 18:42 PM	#1
Mynxie Trying to conceive (TTC) BnB Addict Join Date: Jun 2007 Location: In a dungeon lol Posts: 5,954	Reflex Sympathetic Dystrophy Some of you already know that I have Reflex Sympathetic Dystrophy (RSD), I'm starting a campaign to raise awareness of RSD and the first step in it is the myspace page - www.myspace.com/fightingrsd What I'm hoping is that through my campaign and other peoples campaigns, that fewer people will end up like me, because more people will be diagnosed faster and treated within the critical 3-6 months. Please, click on the RSD picture, here or in my signature, and if you have myspace please add me and spread the word by asking your friends to add me too. RSD can happen to anyone, my limbs don't work properly now cause I slipped on a wet floor and sprained my knee and ankle....that's all it took! It never got better! A few women have got RSD because they had SPD while they were pregnant....their SPD never got better...

Status: Offline

Oct 22nd, 2007, 18:44 PM	#2
Iwantone!!! Other BnB Addict Join Date: Oct 2006 Location: Warrington Posts: 8,317	aawww hunni so anyone can have it and it can take on accident to get RDS am i reading that rght

Status: Offline

Oct 22nd, 2007, 18:53 PM	#3
Mynxie Trying to conceive (TTC) BnB Addict Join Date: Jun 2007 Location: In a dungeon lol Posts: 5,954	yep. It's most common after an injury...a minor one at that. There's 2 kinds, one where a nerve was severed, and the other where it wasn't - mine's the latter. On rarer occasions, someone will just wake up one morning and it'll be there, the intense pain, the deep burning, that part just not doing as it's told, cold to touch, silly colours, swelling (look at the pics on the site - they're my feet during a flare up) and so forth.

Status: Offline

Oct 23rd, 2007, 15:47 PM	#4
Mynxie Trying to conceive (TTC) BnB Addict Join Date: Jun 2007 Location: In a dungeon lol Posts: 5,954	Someone suggested that I do a blog as part of my campaign...was wondering what you ladies thought?

Status: Offline

Oct 23rd, 2007, 16:33 PM	#5
Iwantone!!! Other BnB Addict Join Date: Oct 2006 Location: Warrington Posts: 8,317	go girl xxx

Status: Offline

Oct 23rd, 2007, 18:05 PM	#6
Mynxie Trying to conceive (TTC) BnB Addict Join Date: Jun 2007 Location: In a dungeon lol Posts: 5,954	I've done another site tonight....not really what I wanted if I'm honest but I suppose it's another bit of the web isnt it.... http://www.fightingrsd-crps.zoomshare.com

Status: Offline

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