embo216

Hi Girls,

Just looking for some support really. At my 20 week scan they found something wrong with Lily, she was diagnosed with something called C-Cam, there was a good chance we would lose her but she pulled through, shes such a fighter. Its basically cysts growing on her lungs, the problem was if it was growing to grow so much itd put pressure on her heart and cause cardiac arrest. Now shes born she has a greater risk of infections and problems with her lungs.

Well we had to fight for an appointment for when she was born, bloody NHS, and have just been up to addenbrooks in cambridge. She has to go for a Cat scan in 2 weeks, which means they have to put her on athestic, which terrifys me, but I know its got to be done so they can see whats going on in there. Just the thought of her being so helpless and lifeless scares me silly. If they find its still there she has to have an operation to remove it. Just seems to bloody unfair!

Fingers crossed for her

Deise

I hope she's ok!!

Vickie

Hope the scan goes well. My great niece (who is now 2) was diagnosed with a form of cancer when she was 9 months old (a tumor had grown along her spine) and she's had to be scanned every 3 months (for the first year--now it's every 4 months) and every time they put her under an anethestic. Always a scary thing, especially with a child that young

Linzi

Hope everything goes ok hun

xxx

coz

i really hope all goes well hun, must be horrible for you xxxxx

welshcakes79

fingers crossed for lily, hope everything turns out ok, xxx

Lyns

Oh hunny, what a scary time for you.

My daughter had her first CT scan at 6 weeks old...although she actually managed this with just 'feed and wrap'. Is your daughter quite easily settled after a feed? They may consider this if she is. Its worth asking. If she isn't under GA you may well be able to stay with her the whole time....we did with Morgandie. I just fed her to sleep, setteld her down with a blanket round her body, but her arms above her head and she slept through the lot.

She also spent a while day under a Gamma camera at 8 weeks old....and needed to lie completely still for half and hour at a time....I never believed it possible but she did great and the doctors were confident she'd manage OK.

However she also had her first general anaesthetic at 7 weeks old....and has had several since for both MRI scans and major surgery, and I promise you, you will be amazed at how resilient our LO's are. She comes round each time sounding very groggy and is completely outraged at what she's gone through, but is back to her usual smiley self within minutes....I promise! I breastfeed her as soon as she's awake, and it really seems to help bring her round more!

Morgandie has gone to sleep in my arms every time, although the very second she starts to drift, she is taken away from me and we are ushered out of the room. All our treatment has been at Gt Ormond St...and Addenbrooks are just s good with children, I know.

Please don't worry.....she will be fine. Thats silly , I know, you're a Mum...of course....we all worry, but I promise she will be fine. She's already proved what a fighter she is!

Mamafy

I really hope the scan goes well..xoxox

embo216

You dont know how helpful you have been! They never mentioned about the feed and wrap, that sounds promising I might give them a ring, lily usually goes for a lovely deep nap for 3 hours at about 10am so maybe they could work around that? But if it does come to having to put her to sleep at least I know now she should come round ok as you;ve said, I was so worried because when my OH went under it really affected him and he had a dodgy leg for ages! Your little girl by the way is so beautiful! What a lovely head of hair!

xarlenex

I hope the results are great! Lyns is right, we dont realise just how strong those tiny little babies can be xx